Community Engagement Cure CMD has a strong track record of engaging a global CMD community through the CMD International Registry (CMDIR), webinars, conferences, and social channels, presenting opportunities to offer patient-centered research services, registry enhancements, and data capture/recruitment solutions for clinical studies.
Clinical Collaboration Active involvement in launching clinical trials and partnerships with advocacy and disease-focused platforms indicates a readiness to collaborate on trial design, patient recruitment, and real-world evidence generation for CMD-related research.
Fundraising & Grants Experience co-funding research and securing awards from PCORI and Rare As One Network signals potential for grant management, program funding consulting, and sponsorship sales targeting CMD research initiatives.
Brand & Outreach Recognition as an official charity partner for large events like the TCS NYC Marathon and ongoing news leadership position present opportunities to offer marketing, communications, and patient outreach services to amplify CMD-related campaigns.
Technology & Platform Existing tech footprint including Wix, Fastly, and CRM/engagement tools suggests a need for scalable digital solutions, such as enhanced patient registries, data analytics, and targeted digital marketing to grow reach and streamline operations.