Website Rebuild Cure HHT recently announced an RFP for a comprehensive rebuild of its website, signaling a formal procurement opportunity for a digital partner. With a WordPress-based stack and tools like Gravity Forms and cart functionality, they are seeking modern UX, accessibility, and integration with fundraising, donor management, and patient registry data to support their mission.

Registry Partnerships Their registry research is central to advancing treatments and is already being highlighted at major conferences, indicating a valuable data asset. This opens opportunities for data management services, analytics, trial recruitment support, and partnerships with pharma or academia to leverage real-world evidence and natural history studies.

Biotech Collaborations Recent collaboration with a biotech company to conduct a natural history study demonstrates openness to external research partnerships. This could translate into co-development opportunities, patient-centric trial design support, and sponsored research programs.

Education Expansion The launch of an online continuing education hub shows emphasis on provider education and standardization of care. This creates potential for e-learning content development, LMS integration, accreditation partnerships, and sponsored educational programs with medical device or pharma partners.

Fundraising Growth Cure HHT has a track record of fundraising and seed-money support for research and advocacy efforts, plus engagement with governmental funders. This suggests potential for donor management solutions, grant-writing support, sponsor programs, and partnership opportunities with CSR-focused corporations.