Insights

Nonprofit scale The Marfan Foundation is a mid-sized nonprofit with 51-200 employees and substantial revenue in the 25 to 50 million range, indicating potential for enterprise-level partnerships, sponsorships, and donor management solutions that can scale with their programs.

Research and education focus core activities include funding research, education, and programming for Marfan and related conditions, presenting opportunities to introduce advanced grant management systems, research collaboration platforms, and education delivery tools to enhance impact and reporting.

Digital and data orientation With a tech stack spanning HubSpot, Salesforce, Drupal, AWS, and analytics tools, there is a strong foundation for expanding CRM-driven marketing, donor analytics, and cloud-based program management, suggesting upsell opportunities in data integration, fundraising analytics, and security/compliance services.

Recognition and growth Recent awards and top workplace recognitions signal a growth-minded organization receptive to strategic partnerships, sponsorships, and technology-enabled patient/community outreach initiatives that align with visibility and impact goals.

Events and engagement Active involvement in conferences, awareness weeks, and support groups (e.g., Marfan Connect 50+), plus a history of large conferences, points to opportunities around event tech, virtual/hybrid engagement platforms, volunteer management, and donor stewardship programs.

Similar companies to The Marfan Foundation

The Marfan Foundation Tech Stack

The Marfan Foundation uses 8 technology products and services including HubSpot Analytics, Amazon Web Services, Drupal, and more. Explore The Marfan Foundation's tech stack below.

Media & News

The Marfan Foundation's Email Address Formats

The Marfan Foundation uses at least 4 email formats:
The Marfan Foundation Email FormatsExamplePercentage
FLast@marfan.orgJDoe@marfan.org
91%
Last@marfan.orgDoe@marfan.org
5%
FirstL@marfan.orgJohnD@marfan.org
2%
F.Last@marfan.orgJ.Doe@marfan.org
2%

Frequently Asked Questions

What is The Marfan Foundation's phone number?

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You can contact The Marfan Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is The Marfan Foundation's official website and social media links?

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The Marfan Foundation's official website is marfan.org and has social profiles on LinkedIn.

How much revenue does The Marfan Foundation generate?

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As of September 2026, The Marfan Foundation's annual revenue is estimated to be $25M - $50M.

What is The Marfan Foundation's NAICS code?

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The Marfan Foundation's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does The Marfan Foundation have currently?

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As of September 2026, The Marfan Foundation has approximately 67 employees across 2 continents, including North America and Asia. Key team members include President & Chief Executive Officer: M. W., Director, The Veds Movement: R. R. and Director: M. B. Explore The Marfan Foundation's employee directory with LeadIQ.

What industry does The Marfan Foundation belong to?

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The Marfan Foundation operates in the Non-profit Organizations industry.

What technology does The Marfan Foundation use?

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The Marfan Foundation's tech stack includes HubSpot Analytics, Amazon Web Services, Drupal, Salesforce, Microsoft 365, OpenAI, New Relic and Piwik.

What is The Marfan Foundation's email format?

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The Marfan Foundation's email format typically follows the pattern of FLast@marfan.org. Find more The Marfan Foundation email formats with LeadIQ.

When was The Marfan Foundation founded?

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The Marfan Foundation was founded in 1981.
The Marfan Foundation logo

The Marfan Foundation

Non-profit OrganizationsNew York, United States51-200 Employees

Based in Port Washington, New York, The Marfan Foundation is a mid-sized nonprofit focused on inherited vascular and aortic conditions, including Marfan syndrome and related disorders such as Loeys-Dietz, Stickler, and vascular Ehlers-Danlos syndromes. It functions as a community and resource hub, providing support to affected individuals and families while funding research, education, and programming intended to extend lives and improve quality of life. The organization also serves as a primary online reference for scientists, healthcare providers, and laypeople, connecting researchers with patients and families. In 2025, the foundation launched a dedicated website for Aortic Dissection Awareness Week to share patient resources. It also marked its 40th conference that year, highlighting ongoing programming and community engagement.

Section iconCompany Overview

Phone number
Website
marfan.org
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
1981
Employees
51-200

Section iconFunding & Financials

  • $25M - $50M

    The Marfan Foundation's revenue is estimated to be in the range of $25M - $50M

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