Dravet Syndrome Foundation logo

Dravet Syndrome Foundation Employee Directory

Philanthropic Fundraising ServicesNew Jersey, United States11-50 Employees

The Dravet Syndrome Foundation is a nonprofit organization that raises funds for research into Dravet syndrome and related epilepsies, works to raise awareness of these conditions, and provides support to affected individuals and families. It implements its mission through four core programs: Research Grant Awards, the DSF Research Roundtable, IICEPR (International Ion Channel Patient Registry), and the Patient Assistance Grant Program. Based in Cherry Hill, New Jersey, the organization operates as a small to mid-sized nonprofit within the philanthropic fundraising sector.

Recent activity includes collaborations with other patient-advocacy and research groups, such as partnerships with the Tscalliance and with Children’s Colorado to advance a Dravet natural history study and related initiatives. It also maintains caregiver-focused community programs, including the DSF Caregiver Community Book Club. In addition, the foundation has earned recognition for transparency, receiving the Platinum Seal of Transparency from Candid for ten consecutive years as of January 2026.

Find Dravet Syndrome Foundation employees' phone numbers or email addresses

Dravet Syndrome Foundation Global Highlights

Location
Employees

North America
34

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  • United States Of America
    34

Africa
1

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  • Rwanda
    1

Asia
1

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  • Turkey
    1

Dravet Syndrome Foundation's Leadership

  • Stylized image of a person
    C. G.
    Interim President
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  • Stylized image of a person
    T. O.
    Vice President
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  • Stylized image of a person
    M. R.
    Campaign Director
    Phone icon
  • Stylized image of a person
    J. G.
    Treasurer
    Phone icon
  • Stylized image of a person
    K. M.
    Administrative Assistant
    Phone icon
  • Stylized image of a person
    N. B.
    Board Member
    Phone icon

Dravet Syndrome Foundation Employee Metrics

100%
50%
0%
2026
2025
  • Business
  • Entrepreneurship
  • Information Technology
  • Accounting
  • Administrative
  • Other
  • Branding

Contact profiles from Dravet Syndrome Foundation

Name
Title
Contact Info
Location
Last Update
  • Stylized image of a person
    C. G.
    Interim President
    Phone icon
    Jul 20, 2025
  • Stylized image of a person
    T. O.
    Vice President
    Phone icon
    Oct 17, 2024
  • Stylized image of a person
    M. R.
    Campaign Director
    Phone icon
    Oct 16, 2024
  • Stylized image of a person
    J. G.
    Treasurer
    Phone icon
    Oct 16, 2024
  • Stylized image of a person
    K. M.
    Administrative Assistant
    Phone icon
    Oct 16, 2024
  • Stylized image of a person
    N. B.
    Board Member
    Phone icon
    Oct 17, 2024

Frequently Asked Questions

What is Dravet Syndrome Foundation known for?

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Dravet Syndrome Foundation was founded in 2009 operates in the Philanthropic Fundraising Services industry; you can contact the main corporate office by phone at . Explore Dravet Syndrome Foundation's company overview page for more information.

What is Dravet Syndrome Foundation's most common email format?

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Dravet Syndrome Foundation employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more Dravet Syndrome Foundation email formats with LeadIQ.

How many employees does Dravet Syndrome Foundation have currently?

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Dravet Syndrome Foundation has approximately 23 employees as of July 2026. These team members are located across 3 continents, including North AmericaAfricaAsia.

Who are Dravet Syndrome Foundation's key employees and leadership?

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As of July 2026, Dravet Syndrome Foundation's key employees include:

  • Interim President: C. G.
  • Vice President: T. O.
  • Campaign Director: M. R.
  • Treasurer: J. G.
  • Administrative Assistant: K. M.

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