Growing Partnerships The Dravet Syndrome Foundation actively collaborates with numerous organizations such as TSC Alliance, Children’s Colorado, UCB, and the LGS Foundation, indicating a strategic openness to partnerships that support research, awareness, and patient support initiatives.
Research & Innovation With ongoing programs like research grant awards and the Dravet Lifespan Multidisciplinary Clinic, the foundation demonstrates a significant commitment to advancing scientific understanding and clinical care, creating opportunities to offer innovative medical devices, research tools, or data management solutions.
Digital Engagement The foundation's recent launch of a new website and Spanish-language Facebook support groups suggests a focus on expanding digital outreach and patient engagement channels, providing channels for targeted marketing and educational resources.
Event & Support Expansion Recent promotions and new program launches, including community support initiatives like Facebook groups and patient voice reports, present opportunities to collaborate on event management, support platforms, and patient engagement tools.
Financial & Growth Potential Despite a modest revenue range, the foundation’s active programs and recent initiatives imply potential growth in funding and community impact, making it an attractive partner for service providers or solutions that enhance fundraising, awareness, or patient data collection.