Insights

Fundraising Growth DSF operates a multi-program model focused on research funding, awareness, and patient support, with a recent emphasis on high-visibility fundraising events like Dance for Dravet and a Platinum Seal of Transparency milestone, signaling opportunities to propose integrated donor acquisition, event marketing, and fundraising tech optimization services.

Tech Stack Leverage Current technology includes Google Ads, AWS, WordPress/WooCommerce, SendGrid, and payment processors (AfterPay, Stripe), indicating doors to propose digital marketing optimization, eCommerce enhancements for fundraising merch, CRM integration, and email automation to boost donor engagement and conversion.

Strategic Partnerships Active collaborations with organizations such as TSC Alliance and Children’s Colorado suggest potential for co-branded campaigns, shared registry data initiatives, and grant programs; a sales angle could be partnerships, data sharing solutions, and joint fundraising platforms.

Thought Leadership Ten consecutive years of Platinum Seal of Transparency from Candid highlight a commitment to impact reporting; opportunities exist to offer advanced analytics, storytelling dashboards, and donor transparency tools to attract larger grants and corporate sponsors.

Community Engagement Caregiver Community Book Club and large annual gala indicate strong stakeholder engagement; this presents upsell possibilities for community management software, event tech, donor stewardship programs, and recurring giving campaigns tailored to a passionate supporter base.

Similar companies to Dravet Syndrome Foundation

Dravet Syndrome Foundation Tech Stack

Dravet Syndrome Foundation uses 8 technology products and services including Google Ads, Amazon Web Services, WordPress, and more. Explore Dravet Syndrome Foundation's tech stack below.

Media & News

Dravet Syndrome Foundation's Email Address Formats

Dravet Syndrome Foundation uses at least 2 email formats:
Dravet Syndrome Foundation Email FormatsExamplePercentage
First@dravetfoundation.orgJohn@dravetfoundation.org
78%
First.L@dravetfoundation.orgJohn.D@dravetfoundation.org
22%

Frequently Asked Questions

What is Dravet Syndrome Foundation's phone number?

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You can contact Dravet Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Dravet Syndrome Foundation's official website and social media links?

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Dravet Syndrome Foundation's official website is dravetfoundation.org and has social profiles on LinkedIn.

How much revenue does Dravet Syndrome Foundation generate?

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As of October 2026, Dravet Syndrome Foundation's annual revenue is estimated to be <$1M.

What is Dravet Syndrome Foundation's SIC code and NAICS code?

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Dravet Syndrome Foundation's SIC code is 6732 - Educational, Religious, and Charitable Trusts and NAICS code is 8132 - Grantmaking and Giving Services.

How many employees does Dravet Syndrome Foundation have currently?

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As of October 2026, Dravet Syndrome Foundation has approximately 24 employees across 3 continents, including North America, Africa and Asia. Key team members include Interim President: C. G., Vice President: T. O. and Campaign Director: M. R. Explore Dravet Syndrome Foundation's employee directory with LeadIQ.

What industry does Dravet Syndrome Foundation belong to?

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Dravet Syndrome Foundation operates in the Philanthropic Fundraising Services industry.

What technology does Dravet Syndrome Foundation use?

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Dravet Syndrome Foundation's tech stack includes Google Ads, Amazon Web Services, WordPress, WooCommerce, Google Workspace, SendGrid, AfterPay and Stripe.

What is Dravet Syndrome Foundation's email format?

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Dravet Syndrome Foundation's email format typically follows the pattern of First@dravetfoundation.org. Find more Dravet Syndrome Foundation email formats with LeadIQ.

When was Dravet Syndrome Foundation founded?

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Dravet Syndrome Foundation was founded in 2009.
Dravet Syndrome Foundation logo

Dravet Syndrome Foundation

Philanthropic Fundraising ServicesNew Jersey, United States11-50 Employees

The Dravet Syndrome Foundation is a nonprofit organization that raises funds for research into Dravet syndrome and related epilepsies, works to raise awareness of these conditions, and provides support to affected individuals and families. It implements its mission through four core programs: Research Grant Awards, the DSF Research Roundtable, IICEPR (International Ion Channel Patient Registry), and the Patient Assistance Grant Program. Based in Cherry Hill, New Jersey, the organization operates as a small to mid-sized nonprofit within the philanthropic fundraising sector.

Recent activity includes collaborations with other patient-advocacy and research groups, such as partnerships with the Tscalliance and with Children’s Colorado to advance a Dravet natural history study and related initiatives. It also maintains caregiver-focused community programs, including the DSF Caregiver Community Book Club. In addition, the foundation has earned recognition for transparency, receiving the Platinum Seal of Transparency from Candid for ten consecutive years as of January 2026.

Section iconCompany Overview

Phone number
SIC Code
6732 - Educational, Religious, and Charitable Trusts
NAICS Code
8132 - Grantmaking and Giving Services
Founded
2009
Employees
11-50

Section iconFunding & Financials

  • <$1M

    Dravet Syndrome Foundation's revenue is estimated to be in the range of <$1M

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