Insights

Partnership Expansion DSF has existing partnerships with other patient advocacy groups and pharmaceutical collaborators (including UCB) to advance research and caregiver programs, indicating openness to joint fundraising campaigns and sponsored projects. A sales opportunity is offering co-branded fundraising platforms, joint grant initiatives, and partnership management services to scale funding and reach.

Registry Solutions DSF operates the International Ion Channel Patient Registry (IICEPR) and participates in multi-institution studies, showing a strong emphasis on data-driven research. Propose registry management tools, secure data collection and analytics, patient-reported outcomes support, dashboards, and data-sharing capabilities for pharma or CRO partnerships.

Digital Fundraising DSF currently relies on WordPress and basic analytics with a small team, suggesting opportunities for donor journey optimization, faster site performance, SEO, and enhanced reporting to sustain donations. Offer fundraising optimization, donation form improvements, personalization, A/B testing, and advanced donor analytics.

Outsourced Ops With a lean staff and active caregiver programs such as book clubs and multilingual groups, DSF could benefit from outsourced event management, marketing support, content creation, and multilingual engagement services to scale outreach and fundraising.

Sustainable Growth DSF's revenue range (0-1M) and mission-driven focus present opportunities for philanthropy consulting on recurring giving, corporate sponsorships, grant-writing support, and CRM implementation to optimize donor retention and grant revenue while expanding research funding.

Dravet Syndrome Foundation Tech Stack

Dravet Syndrome Foundation uses 8 technology products and services including TrackJS, WordPress, MySQL, and more. Explore Dravet Syndrome Foundation's tech stack below.

  • TrackJS
    Analytics
  • WordPress
    Content Management System
  • MySQL
    Database
  • Cart Functionality
    E-commerce
  • Select2
    Javascript Libraries
  • jQuery
    Javascript Libraries
  • Kinsta
    Platform As A Service
  • Google Analytics
    Web Analytics

Media & News

Dravet Syndrome Foundation's Email Address Formats

Dravet Syndrome Foundation uses at least 1 format(s):
Dravet Syndrome Foundation Email FormatsExamplePercentage
First@dravetfoundation.orgJohn@dravetfoundation.org
78%
First.L@dravetfoundation.orgJohn.D@dravetfoundation.org
22%

Frequently Asked Questions

Where is Dravet Syndrome Foundation's headquarters located?

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Dravet Syndrome Foundation's main headquarters is located at po Box 3026 Cherry Hill, New Jersey 08034 United States. The company has employees across 3 continents, including North AmericaAfricaAsia.

What is Dravet Syndrome Foundation's phone number?

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You can contact Dravet Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Dravet Syndrome Foundation's official website and social media links?

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Dravet Syndrome Foundation's official website is dravetfoundation.org and has social profiles on LinkedIn.

What is Dravet Syndrome Foundation's NAICS code?

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Dravet Syndrome Foundation's NAICS code is 8132 - Grantmaking and Giving Services.

How many employees does Dravet Syndrome Foundation have currently?

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As of May 2026, Dravet Syndrome Foundation has approximately 23 employees across 3 continents, including North AmericaAfricaAsia. Key team members include Chief Executive Officer: M. A. M.Chief Scientific Officer: V. R.Chief Financial Officer: J. C.. Explore Dravet Syndrome Foundation's employee directory with LeadIQ.

What industry does Dravet Syndrome Foundation belong to?

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Dravet Syndrome Foundation operates in the Philanthropic Fundraising Services industry.

What technology does Dravet Syndrome Foundation use?

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Dravet Syndrome Foundation's tech stack includes TrackJSWordPressMySQLCart FunctionalitySelect2jQueryKinstaGoogle Analytics.

What is Dravet Syndrome Foundation's email format?

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Dravet Syndrome Foundation's email format typically follows the pattern of First@dravetfoundation.org. Find more Dravet Syndrome Foundation email formats with LeadIQ.

When was Dravet Syndrome Foundation founded?

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Dravet Syndrome Foundation was founded in 2009.

Dravet Syndrome Foundation

Philanthropic Fundraising ServicesNew Jersey, United States11-50 Employees

The Dravet Syndrome Foundation is a nonprofit organization that raises funds for research into Dravet syndrome and related epilepsies, works to raise awareness of these conditions, and provides support to affected individuals and families. It implements its mission through four core programs: Research Grant Awards, the DSF Research Roundtable, IICEPR (International Ion Channel Patient Registry), and the Patient Assistance Grant Program. Based in Cherry Hill, New Jersey, the organization operates as a small to mid-sized nonprofit within the philanthropic fundraising sector.

Recent activity includes collaborations with other patient-advocacy and research groups, such as partnerships with the Tscalliance and with Children’s Colorado to advance a Dravet natural history study and related initiatives. It also maintains caregiver-focused community programs, including the DSF Caregiver Community Book Club. In addition, the foundation has earned recognition for transparency, receiving the Platinum Seal of Transparency from Candid for ten consecutive years as of January 2026.

Section iconCompany Overview

Headquarters
po Box 3026 Cherry Hill, New Jersey 08034 United States
Phone number
NAICS Code
8132 - Grantmaking and Giving Services
Founded
2009
Employees
11-50

Section iconFunding & Financials

  • $1M

    Dravet Syndrome Foundation's revenue is estimated to be in the range of $1M

Section iconFunding & Financials

  • $1M

    Dravet Syndrome Foundation's revenue is estimated to be in the range of $1M

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