Dup15q Alliance

Non-profit OrganizationsNorth Carolina, United States11-50 Employees

Dup15q Alliance is a nonprofit organization based in Matthews, North Carolina, dedicated to dup15q syndrome, a rare genetic disorder resulting from extra genetic material on chromosome 15q11.2-13.1. The condition can manifest as autism, seizures, low muscle tone, and developmental delays, and the alliance provides family support, raises awareness, and pursues research and targeted treatments. As a small nonprofit, it operates within the rare-disease and genetic-disorder landscape to offer resources and advocacy for affected individuals and their families.

In March 2025, the organization announced a collaboration with Quiver Bioscience to advance an antisense oligonucleotide therapeutic program. Beyond this, Dup15q Alliance engages in partnerships to support scientific and medical work related to the syndrome from its base in North Carolina.

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