Dup15q Alliance logo

Dup15q Alliance Employee Directory

Non-profit OrganizationsNorth Carolina, United States11-50 Employees

Dup15q Alliance is a nonprofit organization based in Matthews, North Carolina, dedicated to dup15q syndrome, a rare genetic disorder resulting from extra genetic material on chromosome 15q11.2-13.1. The condition can manifest as autism, seizures, low muscle tone, and developmental delays, and the alliance provides family support, raises awareness, and pursues research and targeted treatments. As a small nonprofit, it operates within the rare-disease and genetic-disorder landscape to offer resources and advocacy for affected individuals and their families.

In March 2025, the organization announced a collaboration with Quiver Bioscience to advance an antisense oligonucleotide therapeutic program. Beyond this, Dup15q Alliance engages in partnerships to support scientific and medical work related to the syndrome from its base in North Carolina.

Find Dup15q Alliance employees' phone numbers or email addresses

Dup15q Alliance Global Highlights

Location
Employees

North America
21

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  • United States Of America
    21

Asia
1

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  • Singapore
    1

Europe
1

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  • Spain
    1

Dup15q Alliance's Leadership

  • Administrative Director at Dup15q Alliance
    N. K.
    Administrative Director
  • Marketing Manager (contractor) at Dup15q Alliance
    R. M.
    Marketing Manager (contractor)
  • Dup 15q & Rare Disease Advocate at Dup15q Alliance
    B. L.
    Dup 15q & Rare Disease Advocate

Dup15q Alliance Employee Metrics

100%
50%
0%
2026
2025
  • Entrepreneurship
  • Business
  • Other

Contact profiles from Dup15q Alliance

Name
Title
Contact
Location
Last Update
  • Administrative Director at Dup15q Alliance
    N. K.
    Administrative Director
    Oct 17, 2024
  • Marketing Manager (contractor) at Dup15q Alliance
    R. M.
    Marketing Manager (contractor)
    Oct 17, 2024
  • Dup 15q & Rare Disease Advocate at Dup15q Alliance
    B. L.
    Dup 15q & Rare Disease Advocate
    Singapore
    Sep 16, 2026

Frequently Asked Questions

What is Dup15q Alliance known for?

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Dup15q Alliance was founded in 1994 and operates in the Non-profit Organizations industry. You can contact Dup15q Alliance's main corporate office by phone at . Explore Dup15q Alliance's company overview page for more information.

What is Dup15q Alliance's most common email format?

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Dup15q Alliance employees' email format typically follows the pattern of First.Last@dup15q.org. Trying to find reliable and up-to-date employee contact data? Find more Dup15q Alliance email formats with LeadIQ.

How many employees does Dup15q Alliance have currently?

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Dup15q Alliance has approximately 14 employees as of September 2026. These team members are located across 3 continents, including North America, Asia and Europe.

Who are Dup15q Alliance's key employees and leadership?

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As of September 2026, Dup15q Alliance's key employees include:

  • Administrative Director: N. K.
  • Marketing Manager (contractor): R. M.
  • Dup 15q & Rare Disease Advocate: B. L.

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