Dystonia Medical Research Foundation Employee Directory

Wellness and Fitness ServicesIllinois, United States11-50 Employees

The Dystonia Medical Research Foundation (DMRF) is a Chicago-based nonprofit founded in 1976 and organized as a 501(c)(3) entity focused on dystonia. It serves people with dystonia and their families and operates as a membership-driven organization guided by a Board of Directors and a volunteer network connected to the condition. Its mission centers on pursuing a cure while providing support and resources to those affected.

The organization sits in the wellness and fitness services sector, combining research advocacy with programs for patients and families. In 2021, it partnered with Frontiers to launch Dystonia, a gold open-access journal. It maintains stakeholder communications through publications such as its annual report, with the 2024 DMRF Annual Report now available.

Find Dystonia Medical Research Foundation employees' phone numbers or email addresses

Dystonia Medical Research Foundation Global Highlights

Location
Employees

North America
37

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  • United States Of America
    36
  • Canada
    1

Europe
1

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  • Denmark
    1

Dystonia Medical Research Foundation's Leadership

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    R. H.
    Vice President - Development
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    P. S.
    Vp Support Dystonia Medical Research Foundation
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    A. J. J. M.
    Director
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    S. W.
    Board Director
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    M. D.
    Scientific Director Emeritus
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    E. C.
    Co-Leader Of The Western Pa Dystonia Support Group
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    R. M.
    Principal
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    W. M.
    Advocate
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Dystonia Medical Research Foundation Employee Metrics

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50%
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2026
2025
  • Accounting
  • Administrative
  • Analytics
  • Arts & Design
  • Banking
  • Other
  • Entrepreneurship
  • Business
  • Community & Social Services
  • Media & Communications
  • Support

Contact profiles from Dystonia Medical Research Foundation

Name
Title
Contact Info
Location
Last Update
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    D. C.
    Fundraiser
    Phone icon
    Oct 18, 2024
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    H. H.
    Fundraiser
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    United StatesNew York
    Dec 04, 2024
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    S. R.
    Medical Doctor
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    Oct 17, 2024
  • Stylized image of a person
    S. S.
    Disabled
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    United StatesNew Hampshire
    Oct 23, 2024
  • Stylized image of a person
    S. F.
    Advocate
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    Apr 24, 2025
  • Stylized image of a person
    P. S.
    Vp Support Dystonia Medical Research Foundation
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    United StatesConnecticut
    May 31, 2026
  • Stylized image of a person
    B. S.
    Minnesota Dystonia Support Group Leader
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    United StatesMinnesota
    May 31, 2026

Frequently Asked Questions

What is Dystonia Medical Research Foundation known for?

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Dystonia Medical Research Foundation was founded in 1976 operates in the Wellness and Fitness Services industry. The company's main headquarters is located in Chicago, Illinois 60601 United States; you can contact the main corporate office by phone at . Explore Dystonia Medical Research Foundation's company overview page for more information.

What is Dystonia Medical Research Foundation's most common email format?

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Dystonia Medical Research Foundation employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more Dystonia Medical Research Foundation email formats with LeadIQ.

How many employees does Dystonia Medical Research Foundation have currently?

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Dystonia Medical Research Foundation has approximately 32 employees as of June 2026. These team members are located across 2 continents, including North AmericaEurope.

Who are Dystonia Medical Research Foundation's key employees and leadership?

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As of June 2026, Dystonia Medical Research Foundation's key employees include:

  • Vice President - Development: R. H.
  • Vp Support Dystonia Medical Research Foundation: P. S.
  • Director: A. J. J. M.
  • Board Director: S. W.
  • Scientific Director Emeritus: M. D.

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