EURORDIS Employee Directory

Non-profit OrganizationsÎle-de-france, France51-200 Employees

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease patient organisations from more than 70 countries that work together to improve the lives of all people living with rare diseases in Europe.

By connecting and mobilising all stakeholders from within and outside the rare disease community, EURORDIS strengthens the voice of people living with rare diseases and shapes research, policies and services. 

Our vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no-one behind.

To achieve their full potential, people living with a rare disease need to be:
- recognised as equal citizens with their rights fully respected
- diagnosed timely and accurately
- supported by state-of-the-art medical and social care, or cured
- included in society in all aspects of life and enabled to live independently

Our mission is to work across borders and diseases to improve the lives of all people living with rare diseases.

Find EURORDIS employees' phone numbers or email addresses

EURORDIS Global Highlights

Location
Employees

Europe
77

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  • France
    33
  • Spain
    13
  • Italy
    9
  • United Kingdom Of Great Britain And Northern Ireland
    8
  • Switzerland
    3
  • Belgium
    3
  • Denmark
    2
  • Greece
    1
  • Portugal
    1
  • Finland
    1
  • Netherlands
    1
  • Romania
    1
  • Hungary
    1

North America
6

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  • United States Of America
    6

Africa
1

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  • Zimbabwe
    1

EURORDIS's Leadership

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    Y. L. C.
    Chief Executive Officer
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    P. R.
    Chief Financial Officer
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    M. W.
    Chief Operating Officer
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    T. A.
    President
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    V. H.
    Acting Chief Executive Officer
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    M. M.
    Ea To The Ceo
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    I. H.
    Director Of European Reference Networks And Healthcare
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    M. B.
    Events Director
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EURORDIS Employee Metrics

100%
50%
0%
2026
2025
  • Administrative
  • Business
  • Branding
  • Entrepreneurship
  • Healthcare Services
  • Other
  • Community & Social Services

Contact profiles from EURORDIS

Name
Title
Contact Info
Location
Last Update
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    J. D.
    Social Research Director, Rare Barometer Programme Lead
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    FranceÎle-de-France
    Mar 24, 2026
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    J. P.
    Communications & Policy Liaison Senior Manager
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    FranceÎle-de-France
    Jan 27, 2026
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    M. R.
    Mentor Regulatory & Intellectual Property
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    SpainAndalusia
    Apr 16, 2026
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    M. C. T.
    Open Academy Senior Manager
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    SpainCatalonia
    Apr 15, 2026
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    N. F.
    Spag Member & Patient Advocate
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    United KingdomEngland
    Jan 27, 2026
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    P. M.
    Campaign & Digital Communication Senior Manager
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    Switzerland
    Mar 25, 2026
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    R. F.
    Patient Engagement Manager - Atmps & Clinical Research
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    SpainCatalonia
    Jan 28, 2026
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    R. C.
    Patient Engagement Sr Manager Community Advisory Boards
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    SpainCatalonia
    Apr 13, 2026
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    R. F.
    Acting Deputy Ceo & Head Of Research Policy
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    FranceProvence-Alpes-Côte d'Azur
    Apr 15, 2026
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    S. A.
    Patient Advocate, Vice-Coordinator Of The European Patient Group
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    Vallée de la JeunesseVaud
    Oct 19, 2025

Frequently Asked Questions

What is EURORDIS known for?

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EURORDIS was founded in 1997 operates in the Non-profit Organizations industry. The company's main headquarters is located in 96 Rue Didot Paris, Île-de-france paris014 France; you can contact the main corporate office by phone at . Explore EURORDIS's company overview page for more information.

What is EURORDIS's most common email format?

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EURORDIS employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more EURORDIS email formats with LeadIQ.

How many employees does EURORDIS have currently?

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EURORDIS has approximately 87 employees as of April 2026. These team members are located across 3 continents, including EuropeNorth AmericaAfrica.

Who are EURORDIS's key employees and leadership?

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As of April 2026, EURORDIS's key employees include:

  • Chief Executive Officer: Y. L. C.
  • Chief Financial Officer: P. R.
  • Chief Operating Officer: M. W.
  • President: T. A.
  • Acting Chief Executive Officer: V. H.

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