Familial Dysautonomia Foundation Email Format

Hospitals and Health CareNew York, United States11-50 Employees

The Familial Dysautonomia Foundation is a nonprofit organization in the Hospitals and Health Care sector, based in New York City, New York. Its mission focuses on raising funds and operating programs to improve medical treatment, advance research, educate the public, and provide social services for those affected by familial dysautonomia or at risk. The disorder is a genetic condition affecting autonomic and sensory nervous systems and is found almost exclusively among individuals of Ashkenazi Jewish heritage; it is ultra-rare, with fewer than 320 people worldwide.

Historically, the foundation helped establish the Dysautonomia Center at NYU Langone, which provides medical treatment and clinical research for familial dysautonomia. The organization operates with a relatively small team.

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