Insights

Rare Disease Focus Familial Dysautonomia Foundation specializes in an ultra-rare genetic disorder predominantly found in individuals with Ashkenazi Jewish heritage. This niche focus presents an opportunity for collaborations with organizations focused on rare diseases.

Key Research Center The Dysautonomia Center at NYU Langone, established with the Foundation's support, is a leading global facility for medical treatment and research on familial dysautonomia. Leveraging this key research center can open avenues for research partnerships and knowledge exchange.

Tech-Enabled Engagement The Foundation utilizes modern tech tools such as Amazon Web Services, jQuery, and Google Analytics. Leveraging these technologies can enhance digital engagement strategies, including targeted online campaigns and virtual events.

Experienced Leadership With the recent appointment of Lanie Etkind as director, the Foundation has strengthened its leadership team. Building relationships with key personnel like Lanie can provide insights into organizational goals and facilitate partnership opportunities.

Revenue Potential The Foundation falls within the revenue range of $0-10 million, similar to other health-focused organizations like Global Genes. Exploring collaboration opportunities with these entities can tap into shared resources and potential fundraising avenues.

Similar companies to Familial Dysautonomia Foundation

Familial Dysautonomia Foundation Tech Stack

Familial Dysautonomia Foundation uses 8 technology products and services including Amazon Web Services, Concrete CMS, Font Awesome, and more. Explore Familial Dysautonomia Foundation's tech stack below.

Amazon Web Services
Cloud Hosting
Concrete CMS
Content Management System
Font Awesome
Font Scripts
jQuery
Javascript Libraries
Bootstrap
UI Frameworks
YouTube
Video Players
Google Analytics
Web Analytics
Facebook
Widgets

Media & News

Dysautonomia Foundation Inc hires Lanie Etkind as director.
In late 2018, the Dysautonomia Foundation hired a permanent new director, Lanie Etkind.
Dec 31, 2012 | www.mindyindy.com

Familial Dysautonomia Foundation's Email Address Formats

Familial Dysautonomia Foundation uses at least 1 format(s):

Familial Dysautonomia Foundation Email Formats	Example	Percentage
FLast@familialdysautonomia.org	JDoe@familialdysautonomia.org	56%
First.Last@familialdysautonomia.org	John.Doe@familialdysautonomia.org	33%
Last@familialdysautonomia.org	Doe@familialdysautonomia.org	5%
FirstLast@familialdysautonomia.org	JohnDoe@familialdysautonomia.org	6%

Frequently Asked Questions

Where is Familial Dysautonomia Foundation's headquarters located?

Familial Dysautonomia Foundation's main headquarters is located at 315 W 39th St. Suite 701 New York, NY 10018 US. The company has employees across 2 continents, including North AmericaEurope.

What is Familial Dysautonomia Foundation's phone number?

You can contact Familial Dysautonomia Foundation's main corporate office by phone at

+1-212-279-****

. For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Familial Dysautonomia Foundation's official website and social media links?

Familial Dysautonomia Foundation's official website is familialdysautonomia.org and has social profiles on LinkedIn.

How much revenue does Familial Dysautonomia Foundation generate?

As of August 2024, Familial Dysautonomia Foundation's annual revenue reached $1.9M.

What is Familial Dysautonomia Foundation's NAICS code?

Familial Dysautonomia Foundation's NAICS code is 62 - Health Care and Social Assistance.

How many employees does Familial Dysautonomia Foundation have currently?

As of August 2024, Familial Dysautonomia Foundation has approximately 15 employees across 2 continents, including North AmericaEurope. Key team members include Vice President Operations: J. G.Cfo: A. C.President: B. R.. Explore Familial Dysautonomia Foundation's employee directory with LeadIQ.

What industry does Familial Dysautonomia Foundation belong to?

Familial Dysautonomia Foundation operates in the Hospitals and Health Care industry.

What technology does Familial Dysautonomia Foundation use?

Familial Dysautonomia Foundation's tech stack includes Amazon Web ServicesConcrete CMSFont AwesomejQueryBootstrapYouTubeGoogle AnalyticsFacebook.

What is Familial Dysautonomia Foundation's email format?

Familial Dysautonomia Foundation's email format typically follows the pattern of . Find more Familial Dysautonomia Foundation email formats with LeadIQ.

When was Familial Dysautonomia Foundation founded?

Familial Dysautonomia Foundation was founded in 1951.

Familial Dysautonomia Foundation

Hospitals and Health CareNew York, United States11-50 Employees

Our mission is to raise funds and operate programs to pursue the best possible medical treatment, scientific research, public education and social services for the benefit of those affected with or at risk for familial dysautonomia.

FD is a genetic disorder affecting the autonomic and sensory nervous systems. It is found almost exclusively in people with Ashkenazi Jewish heritage. FD is an ultra-rare disease--fewer than 320 people are currently living with the disorder worldwide.

--Dysautonomia Center at NYU Langone--
In the 1970s the Foundation was instrumental in establishing the Dysautonomia Center at NYU Langone, now the world’s premier site offering medical treatment for and clinical research on FD.