Insights

Fundraising Growth A mid-sized nonprofit with active fundraising operations presents opportunities for donor relationship management, recurring giving, event management, and grant tracking to scale impact.

Research Partnerships Longstanding collaboration with a major academic medical center suggests opportunities to offer research data platforms, patient registries, secure collaboration tools, and grant workflow solutions tailored for clinical research and rare disease studies.

Education Outreach Active public education programs and a digital presence create demand for content management, accessible education portals, video hosting, and analytics to expand outreach and caregiver support.

Patient Registry Ultra-rare disease status implies value in privacy-first patient registries and interoperable data solutions that integrate with healthcare systems and support outcomes research, with data protection and regulatory compliance baked in.

Philanthropy Partnerships A clear philanthropic focus and community ties offer opportunities for CSR sponsorships, donor stewardship programs, and grant-writing support with healthcare and heritage-aligned partners.

Similar companies to Familial Dysautonomia Foundation

Familial Dysautonomia Foundation Tech Stack

Familial Dysautonomia Foundation uses 8 technology products and services including Cloudflare Web Optimizations, Concrete CMS, Cloudflare, and more. Explore Familial Dysautonomia Foundation's tech stack below.

  • Cloudflare Web Optimizations
    Analytics
  • Concrete CMS
    Content Management System
  • Cloudflare
    Content Management System
  • Amazon ALB
    Load Balancers
  • HTTP/3
    Web & Portal Technology
  • Cloudflare Insights
    Web Analytics
  • Apache HTTP Server
    Web Servers
  • Facebook
    Widgets

Familial Dysautonomia Foundation's Email Address Formats

Familial Dysautonomia Foundation uses at least 1 format(s):
Familial Dysautonomia Foundation Email FormatsExamplePercentage
FLast@familialdysautonomia.orgJDoe@familialdysautonomia.org
56%
First.Last@familialdysautonomia.orgJohn.Doe@familialdysautonomia.org
33%
Last@familialdysautonomia.orgDoe@familialdysautonomia.org
5%
FirstLast@familialdysautonomia.orgJohnDoe@familialdysautonomia.org
6%

Frequently Asked Questions

What is Familial Dysautonomia Foundation's phone number?

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You can contact Familial Dysautonomia Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Familial Dysautonomia Foundation's official website and social media links?

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Familial Dysautonomia Foundation's official website is familialdysautonomia.org and has social profiles on LinkedIn.

What is Familial Dysautonomia Foundation's NAICS code?

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Familial Dysautonomia Foundation's NAICS code is 62 - Health Care and Social Assistance.

How many employees does Familial Dysautonomia Foundation have currently?

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As of July 2026, Familial Dysautonomia Foundation has approximately 12 employees across 3 continents, including North AmericaAsiaEurope. Key team members include Executive Director: L. R.Fundraising & Communications Manager: A. P.Manager, Development And Foundation Operations: E. V.. Explore Familial Dysautonomia Foundation's employee directory with LeadIQ.

What industry does Familial Dysautonomia Foundation belong to?

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Familial Dysautonomia Foundation operates in the Hospitals and Health Care industry.

What technology does Familial Dysautonomia Foundation use?

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Familial Dysautonomia Foundation's tech stack includes Cloudflare Web OptimizationsConcrete CMSCloudflareAmazon ALBHTTP/3Cloudflare InsightsApache HTTP ServerFacebook.

What is Familial Dysautonomia Foundation's email format?

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Familial Dysautonomia Foundation's email format typically follows the pattern of FLast@familialdysautonomia.org. Find more Familial Dysautonomia Foundation email formats with LeadIQ.

When was Familial Dysautonomia Foundation founded?

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Familial Dysautonomia Foundation was founded in 1951.
Familial Dysautonomia Foundation logo

Familial Dysautonomia Foundation

Hospitals and Health CareNew York, United States11-50 Employees

The Familial Dysautonomia Foundation is a nonprofit organization in the Hospitals and Health Care sector, based in New York City, New York. Its mission focuses on raising funds and operating programs to improve medical treatment, advance research, educate the public, and provide social services for those affected by familial dysautonomia or at risk. The disorder is a genetic condition affecting autonomic and sensory nervous systems and is found almost exclusively among individuals of Ashkenazi Jewish heritage; it is ultra-rare, with fewer than 320 people worldwide.

Historically, the foundation helped establish the Dysautonomia Center at NYU Langone, which provides medical treatment and clinical research for familial dysautonomia. The organization operates with a relatively small team.

Section iconCompany Overview

Phone number
NAICS Code
62 - Health Care and Social Assistance
Founded
1951
Employees
11-50

Section iconFunding & Financials

  • $1M$10M

    Familial Dysautonomia Foundation's revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    Familial Dysautonomia Foundation's revenue is estimated to be in the range of $1M$10M

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