Insights

Funding and Grants The organization has demonstrated a commitment to advancing research by funding over 1.4 million dollars in grants since 2006, including recent investments like a $50,000 grant to Simpson Lab. This indicates a potential opportunity to offer pharmaceutical or research-focused solutions, sponsorship collaborations, or advanced research tools aligned with their focus on biomedical research and treatment development.

Community Engagement FIRST actively connects its community through support networks and regional conferences, suggesting potential for products and services that enhance event management, community engagement platforms, or educational outreach tools tailored for nonprofit health organizations working in rare disease spaces.

Educational Content The organization produces comprehensive educational materials and a dedicated newsletter, opening avenues to collaborate on digital publishing solutions, subscriber engagement platforms, or content distribution services designed for nonprofit health organizations focused on patient education and support.

Digital Infrastructure With a modern technology stack including cloud optimization, web services, and multimedia content, FIRST is positioned to adopt innovative digital tools such as advanced website analytics, secure data sharing platforms, or virtual conference solutions to further expand their reach and effectiveness.

Funding Opportunities Considering the organization's revenue range between 1 million and 10 million dollars, they may be interested in scalable, cost-effective partnerships or funding solutions that can help expand their research programs, outreach initiatives, and support services without straining their financial resources.

Similar companies to Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)

Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) Tech Stack

Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) uses 8 technology products and services including Cloudflare Web Optimizations, Open Graph, Windows Server, and more. Explore Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s tech stack below.

  • Cloudflare Web Optimizations
    Analytics
  • Open Graph
    Content Management System
  • Windows Server
    Operating Systems
  • YouTube
    Video Players
  • HTTP/3
    Web & Portal Technology
  • Microsoft ASP.NET
    Web Frameworks
  • BDOW
    Widgets
  • Sumo
    Widgets

Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s Email Address Formats

Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) uses at least 1 format(s):
Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) Email FormatsExamplePercentage
FLast@firstskinfoundation.orgJDoe@firstskinfoundation.org
50%
FLast@firstskinfoundation.orgJDoe@firstskinfoundation.org
50%

Frequently Asked Questions

What is Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s phone number?

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You can contact Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s official website and social media links?

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Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s official website is firstskinfoundation.org and has social profiles on LinkedIn.

What is Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s NAICS code?

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Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) have currently?

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As of December 2025, Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) has approximately 13 employees across 3 continents, including North AmericaAsiaEurope. Key team members include Chief Executive Officer: C. B.Board Of Directors-President: M. B.Co-Chairman Of The Board: T. P.. Explore Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s employee directory with LeadIQ.

What industry does Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) belong to?

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Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) operates in the Non-profit Organizations industry.

What technology does Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) use?

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Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s tech stack includes Cloudflare Web OptimizationsOpen GraphWindows ServerYouTubeHTTP/3Microsoft ASP.NETBDOWSumo.

What is Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s email format?

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Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s email format typically follows the pattern of FLast@firstskinfoundation.org. Find more Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) email formats with LeadIQ.

When was Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) founded?

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Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) was founded in 1981.

Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)

Non-profit OrganizationsPennsylvania, United States11-50 Employees

Our mission is to improve lives and seek cures for those affected with ichthyosis or a related skin type. We are a caring organization recognizing the unique challenges faced by our community and provide support with kindness and empathy. While celebrating today's strengths and successes, we strive to convey that the future will be filled with friendship, support and cures. We conduct ourselves in a trustworthy, ethical, and reliable manner in everything we do and say and provide accurate and timely information to meet the medical, social and educational needs of our community.

FIRST produces and distributes reliable information for those affected by ichthyosis. A listing of the booklets and resources is available clicking 'Publications & Educational Library' under the 'Research and Support' tab on the top navigation. Our newsletter, Ichthyosis Focus, is devoted exclusively to the special interests and needs of the ichthyosis community. The Regional Support Network (RSN) and national and regional conferences provide an effective way for our members to identify and interact with one another. The FIRST's Research Program has funded $1.4 million in research grants since its inception in 2006.  The Research Grant Program supports biomedical research into a cure for ichthyosis, new effective treatments, young investigators, and fresh ideas.

Section iconCompany Overview

Phone number
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
1981
Employees
11-50

Section iconFunding & Financials

  • $1M$10M

    Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)'s revenue is estimated to be in the range of $1M$10M

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