Insights

Research Collaboration The FSHD Society actively partners with research organizations and pharmaceutical companies such as Fulcrum Therapeutics and Lumiio, indicating strong potential for collaborations or sales focused on research support, clinical trial integration, and genetic testing services.

Funding & Grants With a streamlined grant management system that reduces review cycles, the society may require advanced funding management or grant tracking solutions, presenting opportunities to offer software or consulting services to optimize their process.

Community Engagement The launch of international awareness initiatives like Walk & Roll highlights engagement strategies that could be supported by event management platforms, sponsorship opportunities, or digital marketing solutions aimed at broad stakeholder mobilization.

Technology Infrastructure Their utilization of modern web tools and content delivery networks suggests openness to innovative digital solutions, including enhanced patient portals, data security services, and platform integrations to facilitate outreach and research activities.

Market Focus As a nonprofit with a global reach and focus on accelerating treatments for FSHD, there are opportunities to introduce specialized patient data analytics, fundraising platforms, and medical R&D partnerships tailored to rare disease organizations.

FSH Muscular Dystrophy Society Tech Stack

FSH Muscular Dystrophy Society uses 8 technology products and services including Cloudflare CDN, Cart Functionality, AMP, and more. Explore FSH Muscular Dystrophy Society's tech stack below.

  • Cloudflare CDN
    Content Delivery Network
  • Cart Functionality
    E-commerce
  • AMP
    Javascript Frameworks
  • Amazon ALB
    Load Balancers
  • Cloudflare Bot Management
    Security
  • Bootstrap
    UI Frameworks
  • The Events Calendar
    Web Platform Extensions
  • WP-PageNavi
    Web Platform Extensions

Media & News

FSH Muscular Dystrophy Society's Email Address Formats

FSH Muscular Dystrophy Society uses at least 2 format(s):
FSH Muscular Dystrophy Society Email FormatsExamplePercentage
First.Last@fshsociety.orgJohn.Doe@fshsociety.org
52%
FirstLast@fshsociety.orgJohnDoe@fshsociety.org
32%
Last@fshsociety.orgDoe@fshsociety.org
12%
FLast@fshsociety.orgJDoe@fshsociety.org
2%
FirLast@fshsociety.orgJohDoe@fshsociety.org
2%
First.Last@fshdsociety.orgJohn.Doe@fshdsociety.org
62%
FirstLast@fshdsociety.orgJohnDoe@fshdsociety.org
23%
First.Last@fshdsociety.orgJohn.Doe@fshdsociety.org
7%
First.Last@fshdsociety.orgJohn.Doe@fshdsociety.org
8%

Frequently Asked Questions

What is FSH Muscular Dystrophy Society's phone number?

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You can contact FSH Muscular Dystrophy Society's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is FSH Muscular Dystrophy Society's official website and social media links?

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FSH Muscular Dystrophy Society's official website is fshdsociety.org and has social profiles on LinkedIn.

What is FSH Muscular Dystrophy Society's NAICS code?

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FSH Muscular Dystrophy Society's NAICS code is 8132 - Grantmaking and Giving Services.

How many employees does FSH Muscular Dystrophy Society have currently?

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As of December 2025, FSH Muscular Dystrophy Society has approximately 52 employees across 4 continents, including North AmericaAsiaEurope. Key team members include Chief Operating Officer: K. K.Chief Scientific Officer: L. R.Chief Community Engagement Officer: B. J.. Explore FSH Muscular Dystrophy Society's employee directory with LeadIQ.

What industry does FSH Muscular Dystrophy Society belong to?

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FSH Muscular Dystrophy Society operates in the Philanthropic Fundraising Services industry.

What technology does FSH Muscular Dystrophy Society use?

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FSH Muscular Dystrophy Society's tech stack includes Cloudflare CDNCart FunctionalityAMPAmazon ALBCloudflare Bot ManagementBootstrapThe Events CalendarWP-PageNavi.

What is FSH Muscular Dystrophy Society's email format?

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FSH Muscular Dystrophy Society's email format typically follows the pattern of First.Last@fshsociety.org. Find more FSH Muscular Dystrophy Society email formats with LeadIQ.

When was FSH Muscular Dystrophy Society founded?

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FSH Muscular Dystrophy Society was founded in 1991.

FSH Muscular Dystrophy Society

Philanthropic Fundraising ServicesMassachusetts, United States51-200 Employees

The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

Our Vision: A world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD)
 
Our Mission: Find treatments and a cure for FSHD while empowering our families
 
Our Strategies:
- Accelerate the development of treatments and a cure for FSHD
- Increase, engage, and empower our stakeholders
- Aggressively leverage and expand resources to support our Mission
 
Our Core Values: Research | Community | Urgency

Section iconCompany Overview

Phone number
NAICS Code
8132 - Grantmaking and Giving Services
Founded
1991
Employees
51-200

Section iconFunding & Financials

  • $1M

    FSH Muscular Dystrophy Society's revenue is estimated to be in the range of $1M

Section iconFunding & Financials

  • $1M

    FSH Muscular Dystrophy Society's revenue is estimated to be in the range of $1M

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