Insights

Strategic Partnerships The organization actively collaborates with major research entities including the NIH and is involved in drug trials for Pulmonary Fibrosis, indicating a strong willingness to engage with external partners and pursue joint research initiatives that could benefit potential vendors or service providers.

Funding Momentum With a revenue range of 1M-10M and past grant support including a $150K grant from the Chan Zuckerberg Initiative, there is demonstrated financial support for research programs and potential for multi-year funding opportunities or grants-based sales for specialized solutions.

Clinical Leadership Recent appointment of a Chief Medical Officer signals a focus on governance and clinical strategy, creating a credible entry point for high-level conversations about medical technologies, data systems, and research collaborations.

Tech Enablement Adoption of a modern web tech stack and analytics tools (Chart.js, Google Tag Manager, HTTP/3, LiteSpeed) suggests a tech-savvy operation receptive to data-driven solutions, patient data management, and secure web-enabled services.

Advocacy & Reach Active participation in national rare disease initiatives and award programs (NORD Rare Impact Awards, NIH challenges) indicates a broad advocacy footprint and potential channels for sponsorships, grant-backed programs, and access to a network of rare disease stakeholders.

Similar companies to Hermansky-Pudlak Syndrome Network

Hermansky-Pudlak Syndrome Network Tech Stack

Hermansky-Pudlak Syndrome Network uses 8 technology products and services including Chart.js, jQuery, jQuery Mobile, and more. Explore Hermansky-Pudlak Syndrome Network's tech stack below.

  • Chart.js
    Javascript Graphics
  • jQuery
    Javascript Libraries
  • jQuery Mobile
    Mobile Frameworks
  • Really Simple SSL & Security
    Security
  • Google Tag Manager
    Tag Management
  • HTTP/3
    Web & Portal Technology
  • FitVids.js
    Web Tools And Plugins
  • Draftpress HFCM
    Web Tools And Plugins

Hermansky-Pudlak Syndrome Network's Email Address Formats

Hermansky-Pudlak Syndrome Network uses at least 1 format(s):
Hermansky-Pudlak Syndrome Network Email FormatsExamplePercentage
FLast@hpsnetwork.orgJDoe@hpsnetwork.org
100%

Frequently Asked Questions

What is Hermansky-Pudlak Syndrome Network's phone number?

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You can contact Hermansky-Pudlak Syndrome Network's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Hermansky-Pudlak Syndrome Network's official website and social media links?

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Hermansky-Pudlak Syndrome Network's official website is hpsnetwork.org and has social profiles on LinkedIn.

What is Hermansky-Pudlak Syndrome Network's NAICS code?

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Hermansky-Pudlak Syndrome Network's NAICS code is 62 - Health Care and Social Assistance.

How many employees does Hermansky-Pudlak Syndrome Network have currently?

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As of July 2026, Hermansky-Pudlak Syndrome Network has approximately 7 employees across 1 continents, including North America. Key team members include Office Assistant: J. D.. Explore Hermansky-Pudlak Syndrome Network's employee directory with LeadIQ.

What industry does Hermansky-Pudlak Syndrome Network belong to?

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Hermansky-Pudlak Syndrome Network operates in the Hospitals and Health Care industry.

What technology does Hermansky-Pudlak Syndrome Network use?

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Hermansky-Pudlak Syndrome Network's tech stack includes Chart.jsjQueryjQuery MobileReally Simple SSL & SecurityGoogle Tag ManagerHTTP/3FitVids.jsDraftpress HFCM.

What is Hermansky-Pudlak Syndrome Network's email format?

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Hermansky-Pudlak Syndrome Network's email format typically follows the pattern of FLast@hpsnetwork.org. Find more Hermansky-Pudlak Syndrome Network email formats with LeadIQ.

When was Hermansky-Pudlak Syndrome Network founded?

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Hermansky-Pudlak Syndrome Network was founded in 1992.
Hermansky-Pudlak Syndrome Network logo

Hermansky-Pudlak Syndrome Network

Hospitals and Health CareNew York, United States2-10 Employees

Hermansky-Pudlak Syndrome Network is a nonprofit organization focused on genetic-related health care issues, specifically the Hermansky-Pudlak Syndrome, with activities aimed at advancing research and pursuing potential cures. Based in Oyster Bay, New York, the organization engages with doctors and national research bodies to develop new research protocols and support drug trials for Pulmonary Fibrosis and related conditions, aiming to improve outcomes for individuals affected by HPS. Operating within the hospitals and health care sector, the group positions itself as a collaborative partner in rare disease research, connecting patients, clinicians, and researchers to advance understanding and treatment options. The organization has pursued formal collaborations with initiatives and institutions such as the National Institutes of Health, and has participated in efforts recognized by national rare disease advocacy groups. Recent developments include leadership appointments and participation in public-facing health challenges and award programs, reflecting ongoing activity in their research and advocacy mission.

Section iconCompany Overview

Phone number
NAICS Code
62 - Health Care and Social Assistance
Founded
1992
Employees
2-10

Section iconFunding & Financials

  • $1M$10M

    Hermansky-Pudlak Syndrome Network's revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    Hermansky-Pudlak Syndrome Network's revenue is estimated to be in the range of $1M$10M

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