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International Foundation for CDKL5 Research (IFCR) Employee Directory

Research ServicesOhio, United States2-10 Employees

The International Foundation for CDKL5 Research (IFCR) is a nonprofit organization that funds research into CDKL5 Deficiency Disorder with the aim of developing treatments and a cure, while supporting affected individuals and families. Its activities include funding both scientific and clinical research and raising awareness of the disorder within medical and lay communities. The organization is based in Wadsworth, Ohio, operating from a PO Box 926, Wadsworth, OH 44282, and maintains a small staff of approximately 2 to 10 employees. IFCR maintains a website at cdkl5.com to provide information on treatment advances and support for CDKL5 families and caregivers. In June 2025, CDKL5 Alliance announced the appointment of Robyn Raphael as Executive Director of the IFCR.

Find International Foundation for CDKL5 Research (IFCR) employees' phone numbers or email addresses

International Foundation for CDKL5 Research (IFCR) Global Highlights

Location
Employees

North America
7

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  • United States Of America
    7

International Foundation for CDKL5 Research (IFCR)'s Leadership

  • Stylized image of a person
    K. U.
    President And Co-Founder
    Phone icon
    Mobile Phone
  • Stylized image of a person
    K. B.
    Board Member
    Phone icon
    Mobile Phone
  • Stylized image of a person
    M. R.
    Secretary
    Phone icon
    Mobile Phone
  • Stylized image of a person
    S. L.
    Director Of Australian Foundation For Cdkl5 Research
    Phone icon
    Mobile Phone

International Foundation for CDKL5 Research (IFCR) Employee Metrics

100%
50%
0%
2026
2025
  • Business
  • Accounting
  • Administrative
  • Analytics
  • Arts & Design
  • Other

Contact profiles from International Foundation for CDKL5 Research (IFCR)

Name
Title
Contact Info
Location
Last Update
  • Stylized image of a person
    K. U.
    President And Co-Founder
    Phone icon
    Mobile Phone
    United StatesMississippi
    Apr 13, 2026
  • Stylized image of a person
    K. B.
    Board Member
    Phone icon
    Mobile Phone
    UNITED STATES
    Jul 08, 2024
  • Stylized image of a person
    M. R.
    Secretary
    Phone icon
    Mobile Phone
    UNITED STATES
    Mar 08, 2023
  • Stylized image of a person
    S. L.
    Director Of Australian Foundation For Cdkl5 Research
    Phone icon
    Mobile Phone
    Jun 02, 2026

Frequently Asked Questions

What is International Foundation for CDKL5 Research (IFCR) known for?

Minus sign iconPlus sign iconInternational Foundation for CDKL5 Research (IFCR) was founded in 2009 operates in the Research Services industry. The company's main headquarters is located in po Box 926 Wadsworth, Ohio 44282 United States. Explore International Foundation for CDKL5 Research (IFCR)'s company overview page for more information.

What is International Foundation for CDKL5 Research (IFCR)'s most common email format?

Minus sign iconPlus sign iconInternational Foundation for CDKL5 Research (IFCR) employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more International Foundation for CDKL5 Research (IFCR) email formats with LeadIQ.

How many employees does International Foundation for CDKL5 Research (IFCR) have currently?

Minus sign iconPlus sign iconInternational Foundation for CDKL5 Research (IFCR) has approximately 8 employees as of May 2026. These team members are located across 1 continents, including North America.

Who are International Foundation for CDKL5 Research (IFCR)'s key employees and leadership?

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As of May 2026, International Foundation for CDKL5 Research (IFCR)'s key employees include:

  • President And Co-Founder: K. U.
  • Board Member: K. B.
  • Secretary: M. R.
  • Director Of Australian Foundation For Cdkl5 Research: S. L.

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