Insights

Growing Funding Base With a revenue estimate ranging from 1 million to 10 million dollars, the International Foundation for CDKL5 Research demonstrates a significant funding capacity within the rare disease research sector, indicating potential for partnerships or sponsorship opportunities in scientific and clinical initiatives.

Leadership Expansion The recent appointment of Robyn Raphael as Executive Director suggests the organization is investing in strategic leadership, which could open new avenues for collaborations, stakeholder engagement, and targeted outreach programs.

Focus on Awareness By actively raising awareness among both medical professionals and the public about CDKL5, the foundation presents opportunities to introduce educational tools, communication platforms, or technology solutions aimed at increasing engagement and dissemination.

Technology Utilization The foundation's use of modern web technologies such as WordPress, JSON-LD, and PWA indicates an openness to digital engagement and online community building, suggesting potential for innovative digital solutions, content distribution, or targeted outreach services.

Collaborative Network Operating within a supportive landscape of similar organizations with diverse resources, the foundation offers prospects for joint ventures, co-funded research projects, or shared platforms that can enhance research and community support efforts.

International Foundation for CDKL5 Research (IFCR) Tech Stack

International Foundation for CDKL5 Research (IFCR) uses 8 technology products and services including Google Hosted Libraries, WordPress, Microsoft 365, and more. Explore International Foundation for CDKL5 Research (IFCR)'s tech stack below.

  • Google Hosted Libraries
    Content Delivery Network
  • WordPress
    Content Management System
  • Microsoft 365
    Email
  • JSON-LD
    Javascript Frameworks
  • PWA
    Miscellaneous
  • Yoast SEO
    Search Engines
  • YouTube
    Video Players
  • Autoptimize
    Web Platform Extensions

International Foundation for CDKL5 Research (IFCR)'s Email Address Formats

International Foundation for CDKL5 Research (IFCR) uses at least 1 format(s):
International Foundation for CDKL5 Research (IFCR) Email FormatsExamplePercentage
FLast@cdkl5.comJDoe@cdkl5.com
38%
First.Last@cdkl5.comJohn.Doe@cdkl5.com
12%
FLast@cdkl5.comJDoe@cdkl5.com
38%
First.Last@cdkl5.comJohn.Doe@cdkl5.com
12%

Frequently Asked Questions

Where is International Foundation for CDKL5 Research (IFCR)'s headquarters located?

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International Foundation for CDKL5 Research (IFCR)'s main headquarters is located at P/o Box 926 Wadsworth, Ohio 44282 United States. The company has employees across 1 continents, including North America.

What is International Foundation for CDKL5 Research (IFCR)'s official website and social media links?

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International Foundation for CDKL5 Research (IFCR)'s official website is cdkl5.com and has social profiles on LinkedIn.

What is International Foundation for CDKL5 Research (IFCR)'s SIC code NAICS code?

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International Foundation for CDKL5 Research (IFCR)'s SIC code is 6732 - Educational, Religious, and Charitable Trusts NAICS code is 5417 - Scientific Research and Development Services.

How many employees does International Foundation for CDKL5 Research (IFCR) have currently?

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As of March 2026, International Foundation for CDKL5 Research (IFCR) has approximately 7 employees across 1 continents, including North America. Key team members include Board Member: K. B.Secretary: M. R.. Explore International Foundation for CDKL5 Research (IFCR)'s employee directory with LeadIQ.

What industry does International Foundation for CDKL5 Research (IFCR) belong to?

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International Foundation for CDKL5 Research (IFCR) operates in the Research Services industry.

What technology does International Foundation for CDKL5 Research (IFCR) use?

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International Foundation for CDKL5 Research (IFCR)'s tech stack includes Google Hosted LibrariesWordPressMicrosoft 365JSON-LDPWAYoast SEOYouTubeAutoptimize.

What is International Foundation for CDKL5 Research (IFCR)'s email format?

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International Foundation for CDKL5 Research (IFCR)'s email format typically follows the pattern of FLast@cdkl5.com. Find more International Foundation for CDKL5 Research (IFCR) email formats with LeadIQ.

When was International Foundation for CDKL5 Research (IFCR) founded?

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International Foundation for CDKL5 Research (IFCR) was founded in 2009.

International Foundation for CDKL5 Research (IFCR)

Research ServicesOhio, United States2-10 Employees

The International Foundation for CDKL5 Research (IFCR)'s mission is to treat and cure CDKL5 Deficiency Disorder by funding scientific research, while helping affected individuals and their families to thrive.

The IFCR is committed to funding research, both scientific and clinical, that will bring about treatments and, ultimately, a cure for CDKL5. We strive to raise awareness of this rare disorder within the medical and lay communities.

Above all, we seek to support all CDKL5 families and caregivers, whether newly diagnosed or well into adulthood, by providing the most current information on treatment advances and how to live their best life possible.

Section iconCompany Overview

Headquarters
P/o Box 926 Wadsworth, Ohio 44282 United States
Website
cdkl5.com
SIC Code
6732 - Educational, Religious, and Charitable Trusts
NAICS Code
5417 - Scientific Research and Development Services
Founded
2009
Employees
2-10

Section iconFunding & Financials

  • $1M$10M

    International Foundation for CDKL5 Research (IFCR)'s revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    International Foundation for CDKL5 Research (IFCR)'s revenue is estimated to be in the range of $1M$10M

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