International Pemphigus Pemphigoid Foundation

Non-profit OrganizationsUnited States11-50 Employees

The International Pemphigus & Pemphigoid Foundation (IPPF) is a registered 501(c)(3) not-for-profit organization and the preeminent global organization dedicated to improving the quality of life of all people diagnosed with, or affected by, pemphigus or pemphigoid. Pemphigus and pemphigoid are autoimmune blistering diseases where the blisters form on the body, mouth or eyes as a person’s immune system attacks itself. 

The IPPF serves patients through a network of trained Peer Health Coaches (PHC). PHCs cover different disease types, time zones, genders and languages to answer questions and guide patients through an ongoing “health management” experience. The IPPF engages in awareness and education projects focusing on patients, caregivers, and medical professionals. The IPPF also provides resources for research addressing mechanisms, relapse-trigger identification, disease treatment,and ongoing pharmaceutical and bio-scientific exploration.

MISSION: The IPPF provides direct access to innovative and effective support that promotes the very best health care, improves quality of life, stimulates community resources, advocates for favorable government policies, accelerates the pace of scientific discovery and is the world’s best source of information on pemphigus and pemphigoid. We are compassionate in understanding, tireless in service, and relentless in advocating. One person at a time, we make a difference, building a community of care and hope.

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