Insights

Funding opportunities IRSF operates with a substantial annual revenue in the multi‑million range and engages in funding research for Rett syndrome, presenting a clear path for partnerships, grant collaborations, and co‑funded projects with pharma, biotech, and academic institutions.

Research & trials The organization’s focus on developing therapies and supporting clinical research indicates a readiness to collaborate on patient registries, trial recruitment, data sharing initiatives, and translational research services that could benefit sponsors pursuing Rett‑related endpoints.

Digital engagement IRSF maintains an active online presence with web apps and digital resources (My Rett Ally) and utilizes modern tech stack devices for outreach; opportunities exist to offer digital health tools, patient education platforms, and sponsor‑driven awareness campaigns.

Advocacy & families As a leading family support and advocacy group with a national footprint, IRSF provides access to patient families and caregiver networks suitable for patient recruitment, stakeholder education, and community engagement programs that align with sponsor CSR and rare‑disease initiatives.

Strategic partnerships The foundation’s collaborations history (industry press and academic ties) signals openness to long‑term partnerships, co‑marketing, and aligned research consortia opportunities with biotech and pharmaceutical companies pursuing Rett syndrome therapies.

International Rett Syndrome Foundation Tech Stack

International Rett Syndrome Foundation uses 8 technology products and services including RSS, Shopify, Google Fonts API, and more. Explore International Rett Syndrome Foundation's tech stack below.

  • RSS
    Content Management System
  • Shopify
    E-commerce
  • Google Fonts API
    Font Scripts
  • Modernizr
    Javascript Libraries
  • Office 365
    Office Suites
  • Google Tag Manager
    Tag Management
  • AddThis
    Widgets
  • Facebook
    Widgets

International Rett Syndrome Foundation's Email Address Formats

International Rett Syndrome Foundation uses at least 1 format(s):
International Rett Syndrome Foundation Email FormatsExamplePercentage
FLast@rettsyndrome.orgJDoe@rettsyndrome.org
91%
FirLast@rettsyndrome.orgJohDoe@rettsyndrome.org
4%
LastF@rettsyndrome.orgDoeJ@rettsyndrome.org
5%

Frequently Asked Questions

What is International Rett Syndrome Foundation's phone number?

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You can contact International Rett Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is International Rett Syndrome Foundation's official website and social media links?

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International Rett Syndrome Foundation's official website is rettsyndrome.org and has social profiles on LinkedIn.

How much revenue does International Rett Syndrome Foundation generate?

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As of July 2026, International Rett Syndrome Foundation's annual revenue is estimated to be $10M - $25M.

What is International Rett Syndrome Foundation's SIC code NAICS code?

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International Rett Syndrome Foundation's SIC code is 8399 - Social Services, Not Elsewhere Classified NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does International Rett Syndrome Foundation have currently?

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As of July 2026, International Rett Syndrome Foundation has approximately 33 employees across 1 continents, including North America. Key team members include Chairman, Irsf: K. K.Executive Director: M. H.Professional Advisor: D. S.. Explore International Rett Syndrome Foundation's employee directory with LeadIQ.

What industry does International Rett Syndrome Foundation belong to?

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International Rett Syndrome Foundation operates in the Non-profit Organizations industry.

What technology does International Rett Syndrome Foundation use?

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International Rett Syndrome Foundation's tech stack includes RSSShopifyGoogle Fonts APIModernizrOffice 365Google Tag ManagerAddThisFacebook.

What is International Rett Syndrome Foundation's email format?

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International Rett Syndrome Foundation's email format typically follows the pattern of FLast@rettsyndrome.org. Find more International Rett Syndrome Foundation email formats with LeadIQ.

When was International Rett Syndrome Foundation founded?

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International Rett Syndrome Foundation was founded in 2007.
International Rett Syndrome Foundation logo

International Rett Syndrome Foundation

Non-profit OrganizationsOhio, United States11-50 Employees

The International Rett Syndrome Foundation is a nonprofit organization focused on Rett syndrome. It funds research toward therapies and a potential cure, supports families with resources to cope, and conducts advocacy to raise awareness. Based in Cincinnati, Ohio, the organization operates as a small team coordinating activities across research funding, family support, and public outreach.

In 2023, the foundation launched the My Rett Ally web app, expanding its toolkit of resources for parents and caregivers. Its work aims to improve understanding, support, and opportunities for individuals affected by Rett syndrome and their families.

Section iconCompany Overview

Phone number
SIC Code
8399 - Social Services, Not Elsewhere Classified
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2007
Employees
11-50

Section iconFunding & Financials

  • $10M - $25M

    International Rett Syndrome Foundation's revenue is estimated to be in the range of $10M - $25M

Section iconFunding & Financials

  • $10M - $25M

    International Rett Syndrome Foundation's revenue is estimated to be in the range of $10M - $25M

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