Insights

Strategic funding Non-profit focus on funding trailblazing Rett syndrome research and therapies, presenting opportunities to partner on grant initiatives, sponsorships, and joint fundraising programs that align with biotech and clinical researchers.

Tech-driven outreach Active use of digital tools (Shopify, Google Tag Manager, AddThis, Office 365) and a family-focused web app (My Rett Ally) create channels for donor engagement, volunteer signups, and paid digital campaigns to expand fundraising and awareness.

Public awareness Strong advocacy role and multiple media mentions indicate receptive audiences for awareness campaigns, patient education content, and multi-channel outreach that can be monetized through sponsorships, merchandise, and event partnerships.

Global impact With international scope and partnerships (e.g., clinical research centers and trials), there are opportunities to co-create research collaborations, clinical trial recruitment programs, and regional fundraising partnerships across markets.

Growth potential Revenue range indicates mid-market scale; potential to upsell enterprise donor programs, corporate partnerships, and philanthropic grants, leveraging relationships with similar organizations and the growing Rett syndrome ecosystem.

Similar companies to International Rett Syndrome Foundation

International Rett Syndrome Foundation Tech Stack

International Rett Syndrome Foundation uses 8 technology products and services including iCIMS, WordPress, Shopify, and more. Explore International Rett Syndrome Foundation's tech stack below.

Media & News

International Rett Syndrome Foundation's Email Address Formats

International Rett Syndrome Foundation uses at least 3 email formats:
International Rett Syndrome Foundation Email FormatsExamplePercentage
FLast@rettsyndrome.orgJDoe@rettsyndrome.org
91%
FirLast@rettsyndrome.orgJohDoe@rettsyndrome.org
5%
LastF@rettsyndrome.orgDoeJ@rettsyndrome.org
4%

Frequently Asked Questions

What is International Rett Syndrome Foundation's phone number?

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You can contact International Rett Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is International Rett Syndrome Foundation's official website and social media links?

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International Rett Syndrome Foundation's official website is rettsyndrome.org and has social profiles on LinkedIn.

How much revenue does International Rett Syndrome Foundation generate?

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As of August 2026, International Rett Syndrome Foundation's annual revenue is estimated to be $10M - $25M.

What is International Rett Syndrome Foundation's SIC code and NAICS code?

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International Rett Syndrome Foundation's SIC code is 8399 - Social Services, Not Elsewhere Classified and NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does International Rett Syndrome Foundation have currently?

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As of August 2026, International Rett Syndrome Foundation has approximately 34 employees across 1 continents, including North America. Key team members include Chairman, Irsf: K. K., Executive Director: M. H. and Professional Advisor: D. S. Explore International Rett Syndrome Foundation's employee directory with LeadIQ.

What industry does International Rett Syndrome Foundation belong to?

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International Rett Syndrome Foundation operates in the Non-profit Organizations industry.

What technology does International Rett Syndrome Foundation use?

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International Rett Syndrome Foundation's tech stack includes iCIMS, WordPress, Shopify, WooCommerce, Microsoft 365, Microsoft Azure, WP Engine and Piwik PRO Core.

What is International Rett Syndrome Foundation's email format?

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International Rett Syndrome Foundation's email format typically follows the pattern of FLast@rettsyndrome.org. Find more International Rett Syndrome Foundation email formats with LeadIQ.

When was International Rett Syndrome Foundation founded?

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International Rett Syndrome Foundation was founded in 2007.
International Rett Syndrome Foundation logo

International Rett Syndrome Foundation

Non-profit OrganizationsOhio, United States11-50 Employees

The International Rett Syndrome Foundation is a nonprofit organization focused on Rett syndrome. It funds research toward therapies and a potential cure, supports families with resources to cope, and conducts advocacy to raise awareness. Based in Cincinnati, Ohio, the organization operates as a small team coordinating activities across research funding, family support, and public outreach.

In 2023, the foundation launched the My Rett Ally web app, expanding its toolkit of resources for parents and caregivers. Its work aims to improve understanding, support, and opportunities for individuals affected by Rett syndrome and their families.

Section iconCompany Overview

Phone number
SIC Code
8399 - Social Services, Not Elsewhere Classified
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2007
Employees
11-50

Section iconFunding & Financials

  • $10M - $25M

    International Rett Syndrome Foundation's revenue is estimated to be in the range of $10M - $25M

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