Insights

Strategic Partnerships IRSF has recently partnered with Citizen Health to bring AI support to the Rett syndrome community, signaling openness to collaborations with tech providers, healthcare innovators, and data/AI-driven services that can augment family support, research enablement, or patient engagement platforms.

Digital & Tech Stack The organization utilizes a range of digital platforms (iCIMS, WordPress, Shopify, WooCommerce, Microsoft 365, Azure, WP Engine, Piwik PRO) indicating receptiveness to enterprise-ready SaaS, content management, e-commerce, and analytics solutions that can streamline fundraising, events, and donor/member experiences.

Funding & Growth With annual revenue in the mid‑single digits (10–25 million) and a focus on funding groundbreaking Rett research and therapies, IRSF represents a capably funded nonprofit partner with potential demand for grant management tools, donor CRM enhancements, and research collaboration platforms.

Research Ecosystem Active involvement in clinical research and therapy development (e.g., collaborations with entities like Neuren; pursuit of Phase 3 trials) creates opportunities to offer clinical trial logistics platforms, patient recruitment solutions, and data integration services for rare diseases.

Awareness & Events Participation in national summits and ongoing awareness campaigns suggests a strong channel for event tech, fundraising campaigns, sponsorship packages, and multi-channel outreach services to boost engagement with families, clinicians, and supporters.

Similar companies to International Rett Syndrome Foundation

International Rett Syndrome Foundation Tech Stack

International Rett Syndrome Foundation uses 8 technology products and services including iCIMS, WordPress, Shopify, and more. Explore International Rett Syndrome Foundation's tech stack below.

Media & News

International Rett Syndrome Foundation's Email Address Formats

International Rett Syndrome Foundation uses at least 3 email formats:
International Rett Syndrome Foundation Email FormatsExamplePercentage
FLast@rettsyndrome.orgJDoe@rettsyndrome.org
91%
FirLast@rettsyndrome.orgJohDoe@rettsyndrome.org
5%
LastF@rettsyndrome.orgDoeJ@rettsyndrome.org
4%

Frequently Asked Questions

What is International Rett Syndrome Foundation's phone number?

Minus sign iconPlus sign icon
You can contact International Rett Syndrome Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is International Rett Syndrome Foundation's official website and social media links?

Minus sign iconPlus sign icon
International Rett Syndrome Foundation's official website is rettsyndrome.org and has social profiles on LinkedIn.

How much revenue does International Rett Syndrome Foundation generate?

Minus sign iconPlus sign icon
As of October 2026, International Rett Syndrome Foundation's annual revenue is estimated to be $10M - $25M.

What is International Rett Syndrome Foundation's SIC code and NAICS code?

Minus sign iconPlus sign icon
International Rett Syndrome Foundation's SIC code is 8399 - Social Services, Not Elsewhere Classified and NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does International Rett Syndrome Foundation have currently?

Minus sign iconPlus sign icon
As of October 2026, International Rett Syndrome Foundation has approximately 34 employees across 1 continents, including North America. Key team members include Chairman, Irsf: K. K., Executive Director: M. H. and Professional Advisor: D. S. Explore International Rett Syndrome Foundation's employee directory with LeadIQ.

What industry does International Rett Syndrome Foundation belong to?

Minus sign iconPlus sign icon
International Rett Syndrome Foundation operates in the Non-profit Organizations industry.

What technology does International Rett Syndrome Foundation use?

Minus sign iconPlus sign icon
International Rett Syndrome Foundation's tech stack includes iCIMS, WordPress, Shopify, WooCommerce, Microsoft 365, Microsoft Azure, WP Engine and Piwik PRO Core.

What is International Rett Syndrome Foundation's email format?

Minus sign iconPlus sign icon
International Rett Syndrome Foundation's email format typically follows the pattern of FLast@rettsyndrome.org. Find more International Rett Syndrome Foundation email formats with LeadIQ.

When was International Rett Syndrome Foundation founded?

Minus sign iconPlus sign icon
International Rett Syndrome Foundation was founded in 2007.
International Rett Syndrome Foundation logo

International Rett Syndrome Foundation

Non-profit OrganizationsOhio, United States11-50 Employees

The International Rett Syndrome Foundation is a nonprofit organization focused on Rett syndrome. It funds research toward therapies and a potential cure, supports families with resources to cope, and conducts advocacy to raise awareness. Based in Cincinnati, Ohio, the organization operates as a small team coordinating activities across research funding, family support, and public outreach.

In 2023, the foundation launched the My Rett Ally web app, expanding its toolkit of resources for parents and caregivers. Its work aims to improve understanding, support, and opportunities for individuals affected by Rett syndrome and their families.

Section iconCompany Overview

Phone number
SIC Code
8399 - Social Services, Not Elsewhere Classified
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2007
Employees
11-50

Section iconFunding & Financials

  • $10M - $25M

    International Rett Syndrome Foundation's revenue is estimated to be in the range of $10M - $25M

Ready to create more pipeline?

Get a demo and discover why thousands of SDR and Sales teams trust
LeadIQ to help them build pipeline confidently.

© LeadIQ, Inc. All rights reserved.