International Rett Syndrome Foundation

Non-profit OrganizationsOhio, United States11-50 Employees

The International Rett Syndrome Foundation is a nonprofit organization focused on Rett syndrome. It funds research toward therapies and a potential cure, supports families with resources to cope, and conducts advocacy to raise awareness. Based in Cincinnati, Ohio, the organization operates as a small team coordinating activities across research funding, family support, and public outreach.

In 2023, the foundation launched the My Rett Ally web app, expanding its toolkit of resources for parents and caregivers. Its work aims to improve understanding, support, and opportunities for individuals affected by Rett syndrome and their families.

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