Insights

New Leadership EveryLife Foundation for Rare Diseases recently hired Michael Pearlmutter as CEO. This change in leadership presents an opportunity to engage with the organization, understand their new vision, and potentially offer relevant services or products.

Industry Collaboration By partnering with organizations like EURORDIS-Rare Diseases Europe, EveryLife Foundation demonstrates a commitment to collaborative initiatives. Engaging with these networks can open doors for joint projects or sponsorship opportunities.

Research Publications The release of papers like 'Valuing Rare Disease Treatments' and 'Pioneering the New Era of Newborn Screening' showcases EveryLife Foundation's focus on research and policy advocacy. Providing solutions or services aligned with their research areas could lead to fruitful collaborations.

Marketing Expertise With the appointment of Margo Metzger as Senior Director of Marketing and Communications, there is a potential avenue to explore partnerships or collaborations in marketing and communication efforts. Leveraging their expertise could benefit both parties.

Advocacy Impact Given EveryLife Foundation's mission to advocate for impactful legislation and equitable access to treatments, there may be opportunities to engage with them on advocacy-related services or solutions. Highlighting synergies with their goals could create valuable partnerships.

EveryLife Foundation for Rare Diseases Tech Stack

EveryLife Foundation for Rare Diseases uses 8 technology products and services including Facebook Pixel, WordPress, Twitter Emoji (Twemoji), and more. Explore EveryLife Foundation for Rare Diseases's tech stack below.

  • Facebook Pixel
    Analytics
  • WordPress
    Content Management System
  • Twitter Emoji (Twemoji)
    Font Scripts
  • Underscore.js
    Javascript Libraries
  • Lodash
    Javascript Libraries
  • WhatsApp Business Chat
    Live Chat
  • Cloudflare Bot Management
    Security
  • The Events Calendar
    Web Platform Extensions

Media & News

EveryLife Foundation for Rare Diseases's Email Address Formats

EveryLife Foundation for Rare Diseases uses at least 2 format(s):
EveryLife Foundation for Rare Diseases Email FormatsExamplePercentage
First@rare.usJohn@rare.us
100%
FLast@everylifefoundation.orgJDoe@everylifefoundation.org
88%
Last@everylifefoundation.orgDoe@everylifefoundation.org
7%
FMiddleLast@everylifefoundation.orgJMichaelDoe@everylifefoundation.org
3%
FirLast@everylifefoundation.orgJohDoe@everylifefoundation.org
2%

Frequently Asked Questions

Where is EveryLife Foundation for Rare Diseases's headquarters located?

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EveryLife Foundation for Rare Diseases's main headquarters is located at 1012 14th Street NW, Suite 500 Washington, District of Columbia 20005 US. The company has employees across 3 continents, including North AmericaEuropeAfrica.

What is EveryLife Foundation for Rare Diseases's phone number?

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You can contact EveryLife Foundation for Rare Diseases's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is EveryLife Foundation for Rare Diseases's official website and social media links?

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EveryLife Foundation for Rare Diseases's official website is everylifefoundation.org and has social profiles on LinkedIn.

How much revenue does EveryLife Foundation for Rare Diseases generate?

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As of August 2024, EveryLife Foundation for Rare Diseases's annual revenue reached $3.8M.

What is EveryLife Foundation for Rare Diseases's SIC code NAICS code?

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EveryLife Foundation for Rare Diseases's SIC code is 8641 - Civic, Social, and Fraternal Associations NAICS code is 92 - Public Administration.

How many employees does EveryLife Foundation for Rare Diseases have currently?

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As of August 2024, EveryLife Foundation for Rare Diseases has approximately 57 employees across 3 continents, including North AmericaEuropeAfrica. Key team members include Chief Executive Officer: M. P.Chief Marketing & Communications Officer: W. N.Chief Operating Officer: M. P.. Explore EveryLife Foundation for Rare Diseases's employee directory with LeadIQ.

What industry does EveryLife Foundation for Rare Diseases belong to?

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EveryLife Foundation for Rare Diseases operates in the Government Administration industry.

What technology does EveryLife Foundation for Rare Diseases use?

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EveryLife Foundation for Rare Diseases's tech stack includes Facebook PixelWordPressTwitter Emoji (Twemoji)Underscore.jsLodashWhatsApp Business ChatCloudflare Bot ManagementThe Events Calendar.

What is EveryLife Foundation for Rare Diseases's email format?

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EveryLife Foundation for Rare Diseases's email format typically follows the pattern of . Find more EveryLife Foundation for Rare Diseases email formats with LeadIQ.

When was EveryLife Foundation for Rare Diseases founded?

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EveryLife Foundation for Rare Diseases was founded in 2009.
EveryLife Foundation for Rare Diseases

EveryLife Foundation for Rare Diseases

Government AdministrationDistrict of Columbia, United States51-200 Employees

We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.

Section iconCompany Overview

Headquarters
1012 14th Street NW, Suite 500 Washington, District of Columbia 20005 US
Phone number
SIC Code
8641 - Civic, Social, and Fraternal Associations
NAICS Code
92 - Public Administration
Founded
2009
Employees
51-200

Section iconFunding & Financials

  • $10M

    EveryLife Foundation for Rare Diseases's revenue is in the range of $10M

Section iconFunding & Financials

  • $10M

    EveryLife Foundation for Rare Diseases's revenue is in the range of $10M

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