Insights

Growing Financial Capacity With a revenue range of 500 million to one billion dollars, the EveryLife Foundation has substantial financial resources that can support new partnerships, innovative projects, and expanded advocacy initiatives in the rare disease sector.

Strategic Alliances Recent collaborations with organizations like Parent Project Muscular Dystrophy and Globalliver demonstrate the foundation's openness to strategic partnerships, which offers opportunities for joint campaigns, policy advocacy, and shared funding initiatives.

Community Engagement The foundation actively participates in influential events such as Rare Disease Week and the Community Congress, indicating a strong community presence and opportunities to engage with key stakeholders, patient groups, and policymakers for targeted outreach and program promotion.

Technology Adoption Utilizing tools like Facebook Pixel, YouTube, and Cloudflare, the foundation demonstrates an investment in digital engagement and data-driven outreach, providing avenues for targeted marketing and educational campaigns tailored to the rare disease community.

Leadership and Innovation The recent appointment of a new CEO and the launch of impactful reports like Valuing Rare Disease Treatments position the foundation as a forward-looking organization, opening doors for innovative collaborations, educational partnerships, and value-based initiatives in healthcare policy and treatment evaluation.

EveryLife Foundation for Rare Diseases Tech Stack

EveryLife Foundation for Rare Diseases uses 8 technology products and services including Facebook Pixel, Cloudflare, Twemoji, and more. Explore EveryLife Foundation for Rare Diseases's tech stack below.

  • Facebook Pixel
    Analytics
  • Cloudflare
    Content Management System
  • Twemoji
    Font Scripts
  • Lightbox
    Javascript Libraries
  • Moment.js
    Javascript Libraries
  • MaxMind
    Mapping And Gis
  • YouTube
    Video Players
  • Nginx
    Web Servers

Media & News

EveryLife Foundation for Rare Diseases's Email Address Formats

EveryLife Foundation for Rare Diseases uses at least 2 format(s):
EveryLife Foundation for Rare Diseases Email FormatsExamplePercentage
First@rare.usJohn@rare.us
100%
FLast@everylifefoundation.orgJDoe@everylifefoundation.org
90%
Last@everylifefoundation.orgDoe@everylifefoundation.org
6%
FMiddleLast@everylifefoundation.orgJMichaelDoe@everylifefoundation.org
2%
FirLast@everylifefoundation.orgJohDoe@everylifefoundation.org
2%

Frequently Asked Questions

Where is EveryLife Foundation for Rare Diseases's headquarters located?

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EveryLife Foundation for Rare Diseases's main headquarters is located at 1012 14th Street Northwest Suite 500 Washington, District of Columbia 20005 United States. The company has employees across 2 continents, including North AmericaEurope.

What is EveryLife Foundation for Rare Diseases's phone number?

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You can contact EveryLife Foundation for Rare Diseases's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is EveryLife Foundation for Rare Diseases's official website and social media links?

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EveryLife Foundation for Rare Diseases's official website is everylifefoundation.org and has social profiles on LinkedIn.

What is EveryLife Foundation for Rare Diseases's SIC code NAICS code?

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EveryLife Foundation for Rare Diseases's SIC code is 8641 - Civic, Social, and Fraternal Associations NAICS code is 921 - Executive, Legislative, and Other General Government Support.

How many employees does EveryLife Foundation for Rare Diseases have currently?

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As of April 2026, EveryLife Foundation for Rare Diseases has approximately 79 employees across 2 continents, including North AmericaEurope. Key team members include Chief Executive Officer: M. P.Chief Mission Officer: A. K.Chief Marketing & Communications Officer: W. N.. Explore EveryLife Foundation for Rare Diseases's employee directory with LeadIQ.

What industry does EveryLife Foundation for Rare Diseases belong to?

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EveryLife Foundation for Rare Diseases operates in the Public Policy Offices industry.

What technology does EveryLife Foundation for Rare Diseases use?

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EveryLife Foundation for Rare Diseases's tech stack includes Facebook PixelCloudflareTwemojiLightboxMoment.jsMaxMindYouTubeNginx.

What is EveryLife Foundation for Rare Diseases's email format?

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EveryLife Foundation for Rare Diseases's email format typically follows the pattern of First@rare.us. Find more EveryLife Foundation for Rare Diseases email formats with LeadIQ.

When was EveryLife Foundation for Rare Diseases founded?

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EveryLife Foundation for Rare Diseases was founded in 2009.

EveryLife Foundation for Rare Diseases

Public Policy OfficesDistrict of Columbia, United States51-200 Employees

The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading science-driven policy and regulatory research, activating the community to advocate for their rights and needs, and strengthening the rare disease community.

Section iconCompany Overview

Headquarters
1012 14th Street Northwest Suite 500 Washington, District of Columbia 20005 United States
Phone number
SIC Code
8641 - Civic, Social, and Fraternal Associations
NAICS Code
921 - Executive, Legislative, and Other General Government Support
Founded
2009
Employees
51-200

Section iconFunding & Financials

  • $500M$1B

    EveryLife Foundation for Rare Diseases's revenue is estimated to be in the range of $500M$1B

Section iconFunding & Financials

  • $500M$1B

    EveryLife Foundation for Rare Diseases's revenue is estimated to be in the range of $500M$1B

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