New LeadershipEveryLife Foundation for Rare Diseases recently hired Michael Pearlmutter as CEO. This change in leadership presents an opportunity to engage with the organization, understand their new vision, and potentially offer relevant services or products.
Industry CollaborationBy partnering with organizations like EURORDIS-Rare Diseases Europe, EveryLife Foundation demonstrates a commitment to collaborative initiatives. Engaging with these networks can open doors for joint projects or sponsorship opportunities.
Research PublicationsThe release of papers like 'Valuing Rare Disease Treatments' and 'Pioneering the New Era of Newborn Screening' showcases EveryLife Foundation's focus on research and policy advocacy. Providing solutions or services aligned with their research areas could lead to fruitful collaborations.
Marketing ExpertiseWith the appointment of Margo Metzger as Senior Director of Marketing and Communications, there is a potential avenue to explore partnerships or collaborations in marketing and communication efforts. Leveraging their expertise could benefit both parties.
Advocacy ImpactGiven EveryLife Foundation's mission to advocate for impactful legislation and equitable access to treatments, there may be opportunities to engage with them on advocacy-related services or solutions. Highlighting synergies with their goals could create valuable partnerships.