KIF1A.ORG Employee Directory

Non-profit OrganizationsUnited States2-10 Employees

KIF1A.ORG is a United States–based nonprofit organization focused on improving the lives of individuals and families affected by KIF1A Associated Neurological Disorder (KAND) and advancing research toward treatments and cures. As a 501(c)(3) entity, it supports research and collaboration within the rare disease community to accelerate therapeutic development and discovery for KAND, a neurodegenerative condition linked to variants in the KIF1A gene that can cause cognitive impairment, cerebellar atrophy, ataxia, spastic paraplegia, optic nerve atrophy, and epilepsy. The organization engages in initiatives and partnerships to enable research, including programs like mini grants and collaborative efforts with other entities, and has a purpose-driven focus on connecting affected individuals with research progress. Based in the United States, KIF1A.ORG operates with a small team and has pursued multiple campaigns and collaborations over recent years to support its mission.

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