Myositis Support and Understanding Association, Inc. (MSU) Employee Directory
Wellness and Fitness ServicesDelaware, United States11-50 Employees
The Myositis Support and Understanding Association, Inc. (MSU) operates as a patient-led, all-volunteer nonprofit in the wellness and fitness services sector, focusing on myositis education, support, advocacy, and access to research. Based in Lincoln, Delaware, MSU provides financial assistance for mobility devices, medical bills, and travel to specialists, while fostering collaboration with other patient groups, industry partners, and researchers to advance treatment and patient-led research initiatives. Its programs include a community platform for storytelling and peer connection, a live video support program, and partnerships that broaden patient access to information and resources. Founded by myositis patients and caregivers, MSU emphasizes empowering those affected by the condition and facilitating patient input into research and care, with ongoing efforts to connect patients with experts and researchers. A recent development highlighted in its updates is continued engagement through webinars and collaborations with researchers and industry partners to discuss pain management and novel therapies.
1-888-653-2347 
support@leadiq.com 
