PFIC Network Email Format

Non-profit OrganizationsKentucky, United States2-10 Employees

PFIC Network is a small nonprofit organization focused on PFIC, a rare liver disorder. It provides information for families, connects them with medical providers, and supports access to genetic testing and up-to-date research. The organization traces its roots to PFIC.org, founded in 2002 by a parent seeking information and community, and it expanded in 2018 into the PFIC Advocacy and Resource Network, a 501(c)(3) charity.

Led by PFIC parents and dedicated supporters, the organization is based in Stanton, Kentucky, with a global network of families. It operates within the nonprofit sector to advocate for more medical research and to foster connections and support across international PFIC communities.

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