Insights

Strong NGO Presence PFIC Network is a dedicated non-profit organization focused on rare disease advocacy, with a committed leadership comprising affected parents and supporters, providing opportunities for partnerships in healthcare, education, and research initiatives.

Global Outreach While based in the United States, PFIC Network maintains a strong international connection, serving families worldwide, which opens avenues for offering multilingual support, international funding opportunities, and global health technology solutions.

Funding and Revenue With an annual revenue between one to ten million dollars, PFIC Network has the financial capacity to invest in health tech solutions, data management tools, and community-building platforms to enhance its advocacy and resource programs.

Technology Stack Utilizing various web and social media tools, including WooCommerce, Facebook, and open-source servers, the organization is well-positioned to adopt innovative digital outreach and e-commerce solutions for fundraising, resource sharing, and community engagement.

Potential Partnership Opportunities Given their focus on accessible genetic testing labs and research updates, there is a clear opportunity to collaborate on health data analytics, telemedicine platforms, or genetic testing technologies to support their mission and expand their service offerings.

PFIC Network Tech Stack

PFIC Network uses 8 technology products and services including DreamHost, WooCommerce Stripe Payment Gateway, AddToAny Share Buttons, and more. Explore PFIC Network's tech stack below.

  • DreamHost
    Web Hosting
  • WooCommerce Stripe Payment Gateway
    Web Platform Extensions
  • AddToAny Share Buttons
    Web Platform Extensions
  • Apache HTTP Server
    Web Servers
  • OpenResty
    Web Servers
  • Apache
    Web Servers
  • Facebook
    Widgets
  • AddToAny
    Widgets

Media & News

PFIC Network's Email Address Formats

PFIC Network uses at least 1 format(s):
PFIC Network Email FormatsExamplePercentage
First@pfic.orgJohn@pfic.org
39%
FirstLas@pfic.orgJohnDoe@pfic.org
11%
First.Last@pfic.orgJohn.Doe@pfic.org
11%
First@pfic.orgJohn@pfic.org
39%

Frequently Asked Questions

Where is PFIC Network's headquarters located?

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PFIC Network's main headquarters is located at Stanton, Kentucky 40380 United States. The company has employees across 5 continents, including North AmericaEuropeAsia.

What is PFIC Network's official website and social media links?

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PFIC Network's official website is pfic.org and has social profiles on LinkedIn.

What is PFIC Network's NAICS code?

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PFIC Network's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does PFIC Network have currently?

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As of March 2026, PFIC Network has approximately 10 employees across 5 continents, including North AmericaEuropeAsia. Key team members include Chief Executive Director: E. V.Owner: R. P.Associate Program Director: M. K.. Explore PFIC Network's employee directory with LeadIQ.

What industry does PFIC Network belong to?

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PFIC Network operates in the Non-profit Organizations industry.

What technology does PFIC Network use?

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PFIC Network's tech stack includes DreamHostWooCommerce Stripe Payment GatewayAddToAny Share ButtonsApache HTTP ServerOpenRestyApacheFacebookAddToAny.

What is PFIC Network's email format?

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PFIC Network's email format typically follows the pattern of First@pfic.org. Find more PFIC Network email formats with LeadIQ.

When was PFIC Network founded?

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PFIC Network was founded in 2018.

PFIC Network

Non-profit OrganizationsKentucky, United States2-10 Employees

The website PFIC.org was founded in 2002 by a mom who wanted to know all she could about her daughter’s disease. She envisioned a place that people could visit when they needed information, hope and understanding. Through her dedication and commitment, she has helped connect families with providers, built accessible genetic testing labs and has stayed up to date with the latest research. In September 2018, three PFIC moms worked to expand pfic.org into PFIC Advocacy and Resource Network, a 501c3 charitable organization.
PFIC Network is led by PFIC parents and dedicated supporters. Although we are a US-based organization, we have a strong connection to families all over the world. Together, PFIC families can become a greater voice in the rare disease community, advocating for more medical research, and creating opportunities to help families connect across the world and receive the support they need. Together, we WILL make a difference

Section iconCompany Overview

Headquarters
Stanton, Kentucky 40380 United States
Website
pfic.org
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2018
Employees
2-10

Section iconMedia & News

Section iconFunding & Financials

  • $1M$10M

    PFIC Network's revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    PFIC Network's revenue is estimated to be in the range of $1M$10M

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