Prune Belly Syndrome Network, Inc.
Civic and Social OrganizationsWisconsin, United States2-10 Employees
Prune Belly Syndrome Network, Inc. (PBSN) is a nonprofit, volunteer-led organization based in Oshkosh, Wisconsin, focused on providing information about prune belly syndrome, also known as Eagle-Barrett syndrome. The group serves individuals born with the condition, their families, physicians, and other interested parties by sharing experiences and offering support, while advocating for international standards in diagnosis and treatment. Operating within the civic and social organizations landscape, PBSN pursues its mission through an Internet-based platform that facilitates information dissemination and peer connection. The organization is described as a small, formal entity with a charitable status designed to educate and connect people affected by prune belly syndrome on a global level.