Insights

Community Support Small, volunteer-led nonprofit focused on disseminating information and peer support for prune belly syndrome, indicating potential for partnerships with patient advocacy programs and caregiver engagement initiatives.

Digital Presence Internet-based operations with WordPress, RSS, oEmbed, Gravity Forms, YouTube, NextGEN Gallery, and Microsoft 365 suggest receptiveness to online campaigns, content marketing, and donor/volunteer recruitment through digital channels.

Funding Profile Revenue under one million positions PBSN as a lean organization; potential for grant funding, sponsorships, and targeted nonprofit fundraising collaborations aligned with rare diseases and pediatric metabolic conditions.

Clinical Collaboration Promotes international standards for diagnosis and treatment, signaling openness to partnerships with medical societies, associations, and research initiatives that can expand program impact and grant eligibility.

Competitive Landscape Operates in a niche with similar-sized peers like Global Genes and The MAGIC Foundation, offering opportunities for coalition-building, shared resources, and joint awareness campaigns to expand reach.

Prune Belly Syndrome Network, Inc. Tech Stack

Prune Belly Syndrome Network, Inc. uses 8 technology products and services including RSS, WordPress, oEmbed, and more. Explore Prune Belly Syndrome Network, Inc.'s tech stack below.

RSS

Content Management System

WordPress

Content Management System

oEmbed

Dev Tools

Microsoft 365

NextGEN Gallery

Photo Galleries

YouTube

Video Players

Gravity Forms

Web Platform Extensions

Apache

Web Servers

Prune Belly Syndrome Network, Inc. Email Formats	Example	Percentage
FLast@prunebelly.org	JDoe@prunebelly.org	100%

Prune Belly Syndrome Network, Inc. Email Formats

Example

Percentage

FLast@prunebelly.org

JDoe@prunebelly.org

100%

Frequently Asked Questions

What is Prune Belly Syndrome Network, Inc.'s phone number?

You can contact Prune Belly Syndrome Network, Inc.'s main corporate office by phone at

+1-608-266-****

. For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Prune Belly Syndrome Network, Inc.'s official website and social media links?

Prune Belly Syndrome Network, Inc.'s official website is prunebelly.org and has social profiles on LinkedIn.

How much revenue does Prune Belly Syndrome Network, Inc. generate?

As of August 2026, Prune Belly Syndrome Network, Inc.'s annual revenue is estimated to be <$1M.

What is Prune Belly Syndrome Network, Inc.'s NAICS code?

Prune Belly Syndrome Network, Inc.'s NAICS code is 8134 - Civic and Social Organizations.

How many employees does Prune Belly Syndrome Network, Inc. have currently?

As of August 2026, Prune Belly Syndrome Network, Inc. has approximately 2 employees across 1 continents, including North America. Key team members include Vice President: D. A. Explore Prune Belly Syndrome Network, Inc.'s employee directory with LeadIQ.

What industry does Prune Belly Syndrome Network, Inc. belong to?

Prune Belly Syndrome Network, Inc. operates in the Civic and Social Organizations industry.

What technology does Prune Belly Syndrome Network, Inc. use?

Prune Belly Syndrome Network, Inc.'s tech stack includes RSS, WordPress, oEmbed, Microsoft 365, NextGEN Gallery, YouTube, Gravity Forms and Apache.

What is Prune Belly Syndrome Network, Inc.'s email format?

Prune Belly Syndrome Network, Inc.'s email format typically follows the pattern of FLast@prunebelly.org. Find more Prune Belly Syndrome Network, Inc. email formats with LeadIQ.

When was Prune Belly Syndrome Network, Inc. founded?

Prune Belly Syndrome Network, Inc. was founded in 1996.

Prune Belly Syndrome Network, Inc.

Q: How many employees does Prune Belly Syndrome Network, Inc. have currently?

Prune Belly Syndrome Network, Inc. has approximately 2 employees.

Q: What industry does Prune Belly Syndrome Network, Inc. belong to?

Prune Belly Syndrome Network, Inc. operates in the Civic and Social Organizations industry.

Q: What technology does Prune Belly Syndrome Network, Inc. use?

Prune Belly Syndrome Network, Inc.'s tech stack includes oEmbed, Gravity Forms, Lightbox, YouTube, Twemoji.

Q: When was Prune Belly Syndrome Network, Inc. founded?

Prune Belly Syndrome Network, Inc. was founded in 1996.

Q: What is Prune Belly Syndrome Network, Inc.'s NAICS code?

Prune Belly Syndrome Network, Inc.'s NAICS code is 8134 (Civic and Social Organizations).

Civic and Social OrganizationsWisconsin, United States2-10 Employees

Prune Belly Syndrome Network, Inc. (PBSN) is a nonprofit, volunteer-led organization based in Oshkosh, Wisconsin, focused on providing information about prune belly syndrome, also known as Eagle-Barrett syndrome. The group serves individuals born with the condition, their families, physicians, and other interested parties by sharing experiences and offering support, while advocating for international standards in diagnosis and treatment. Operating within the civic and social organizations landscape, PBSN pursues its mission through an Internet-based platform that facilitates information dissemination and peer connection. The organization is described as a small, formal entity with a charitable status designed to educate and connect people affected by prune belly syndrome on a global level.

Insights

Similar companies to Prune Belly Syndrome Network, Inc.

Global Genes

The MAGIC Foundation