Prune Belly Syndrome Network, Inc. Email Format
Civic and Social OrganizationsUnited States2-10 Employees
The Prune Belly Syndrome Network, Inc. (PBSN) is a 501(c)(3) volunteer-led, Internet-based corporation devoted to disseminating timely and accurate information about prune belly syndrome to people born with it and their family members, physicians, and other interested parties. The PBSN provides a means for clients to share experiences and support one another. The PBSN encourages the establishment of international standards for the diagnosis and treatment of prune belly syndrome, which is also known scientifically as Eagle-Barrett syndrome.