Sickle Cell Disease Association of America, Inc. Employee Directory
Non-Profit Organization ManagementMaryland, United States51-200 Employees
The Sickle Cell Disease Association of America, Inc. is a national nonprofit that advocates for individuals with sickle cell disease and strengthens member organizations to improve health, daily life, and access to services for affected people, families, and communities. In addition to advocacy, it supports efforts to advance research and a cure for sickle cell disease and related conditions worldwide. Based in Baltimore, Maryland, the organization serves as a hub for advocacy, collaboration, and information sharing across its network. In 2026, SCDAA is partnering with the National Heart, Lung, and Blood Institute to host the event "Research That Heals: Partnering to Transform SCD Care" on June 25–26, 2026. This collaboration illustrates the group’s role in coordinating cross-institutional initiatives to improve care and access to resources for people living with sickle cell disease.