Soft Bones, Inc US Hypophosphatasia Foundation Employee Directory
Wellness and Fitness ServicesNew Jersey, United States11-50 Employees
Soft Bones, Inc US Hypophosphatasia Foundation operates within the wellness and fitness services sector, focusing on education, information, and support for individuals affected by hypophosphatasia (HPP), as well as their families and caregivers. The organization also aims to advance research on this rare bone disorder through awareness initiatives and fundraising activities, contributing to the broader community affected by HPP. Based in Boonton, New Jersey, the foundation serves a specialized patient and caregiver audience seeking reliable guidance on disease management in the absence of a curative treatment. With a nonprofit-oriented mission, it positions itself as a resource and advocacy group within the rare disease landscape, addressing gaps in knowledge, care coordination, and research support for HPP.