Support For People With Oral And Head And Neck Cancer (SPOHNC)

Non-profit OrganizationsUnited States2-10 Employees

Support For People With Oral And Head And Neck Cancer (SPOHNC) is a nonprofit 501(c)(3) organization dedicated to raising awareness & meeting the needs of oral & head & neck cancer patients through its resources & publications.

SPOHNC was founded by oral cancer survivor, Nancy Leupold in 1991, when few resources existed for this patient population. SPOHNC offers programs & services for oral, head & neck cancer patients, caregivers, survivors & friends. The Outreach Program includes 120+ CHAPTER SUPPORT GROUPS throughout the U.S, a National Survivor Volunteer Network match program which matches patients with survivors, according to  diagnosis & treatment, a monthly newsletter & additional resources at www.spohnc.org.

In 2015, SPOHNC launched the Second Edition of We Have Walked In Your Shoes A Guide for Living With Oral and Head and Neck Cancer, for newly diagnosed patients & those going through treatment. This resource contains the basics about the symptoms & diagnosis of head & neck cancer, types of treatment & common side effects. It also offers a section to list your healthcare team, a personal calendar & journal, diet & nutrition information & a resource list.

Many have enjoyed Eat Well Stay Nourished, A Recipe and Resource Guide for Coping with Eating Challenges. Volume 2 of this book provides support & encouragement to those with eating challenges. Both books contain recipes submitted by survivors & family members, information about swallowing problems & nutrition, cancer journeys of survivors & “Tips from the Pros”. Volume 2 has a chapter related to “Fortifying Ingredients for Weight Gain”.

SPOHNC's Second Edition of Meeting The Challenges Of Oral And Head And Neck Cancer, A Guide For Survivors And Caregivers, updates the first edition & brings 5 new chapters of information, including a chapter addressing psychosocial issues.  A “must read” for survivors,  caregivers & healthcare professionals involved in the care of oral,head & neck cancer patients.

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