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THE RYR-1 FOUNDATION Employee Directory

Non-profit OrganizationsPennsylvania, United States2-10 Employees

The RYR-1 Foundation is a small nonprofit public charity based in Pittsburgh, Pennsylvania, focused on diseases linked to the RYR-1 gene. It is the only organization exclusively dedicated to RYR-1-related diseases, pursuing a mission to advance treatments or a cure and to support research through grants and a patient registry. It also works to educate medical professionals about RYR-1-RD via resources on its website and direct engagement with clinicians worldwide.

It provides resources and advocacy for patients and families affected by RYR-1-RD, including information on its website, social media, and Family Conferences. Recent activities include attending a Research Workshop and Family Conference in June 2025 and launching a Portuguese version of its materials in October 2023, highlighting ongoing outreach from its Pittsburgh base.

Find THE RYR-1 FOUNDATION employees' phone numbers or email addresses

THE RYR-1 FOUNDATION Global Highlights

Location
Employees

North America
18

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  • United States Of America
    18

Asia
1

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  • Bangladesh
    1

THE RYR-1 FOUNDATION's Leadership

  • Stylized image of a person
    E. M.
    Director Of Development And Math Workshop
    Phone icon
    Mobile Phone
  • Stylized image of a person
    N. B.
    Community Relations
    Phone icon
    Mobile Phone

THE RYR-1 FOUNDATION Employee Metrics

100%
50%
0%
2026
2025
  • Business
  • Entrepreneurship
  • Program & Project Management
  • Other
  • Consultant

Contact profiles from THE RYR-1 FOUNDATION

Name
Title
Contact Info
Location
Last Update
  • Stylized image of a person
    E. M.
    Director Of Development And Math Workshop
    Phone icon
    Mobile Phone
    Oct 17, 2024
  • Stylized image of a person
    N. B.
    Community Relations
    Phone icon
    Mobile Phone
    Oct 22, 2024

Frequently Asked Questions

What is THE RYR-1 FOUNDATION known for?

Minus sign iconPlus sign iconTHE RYR-1 FOUNDATION was founded in 2014 operates in the Non-profit Organizations industry. Explore THE RYR-1 FOUNDATION's company overview page for more information.

What is THE RYR-1 FOUNDATION's most common email format?

Minus sign iconPlus sign iconTHE RYR-1 FOUNDATION employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more THE RYR-1 FOUNDATION email formats with LeadIQ.

How many employees does THE RYR-1 FOUNDATION have currently?

Minus sign iconPlus sign iconTHE RYR-1 FOUNDATION has approximately 8 employees as of August 2026. These team members are located across 2 continents, including North AmericaAsia.

Who are THE RYR-1 FOUNDATION's key employees and leadership?

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As of August 2026, THE RYR-1 FOUNDATION's key employees include:

  • Director Of Development And Math Workshop: E. M.
  • Community Relations: N. B.

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