THE RYR-1 FOUNDATION Employee Directory

Q: What is THE RYR-1 FOUNDATION known for?

THE RYR-1 FOUNDATION was founded in 2014. THE RYR-1 FOUNDATION operates in the Non-profit Organizations industry.

Q: How many employees does THE RYR-1 FOUNDATION have currently?

THE RYR-1 FOUNDATION has approximately 8 employees.

Non-profit OrganizationsPennsylvania, United States2-10 Employees

The RYR-1 Foundation is a 501(c)(3) public charity based in Pittsburgh, Pennsylvania, United States.

The mission of The RYR-1 Foundation is to support research leading to an effective treatment or a cure for RYR-1-related diseases (RYR-1-RD). To achieve this mission, The RYR-1 Foundation pursues the following goals:

Support Research: The RYR-1 Foundation makes grants to researchers interested in RYR-1-RD. As the only organization solely dedicated to RYR-1-RD, we fund, promote, and highlight research in this area. Our ongoing development of a patient registry is also key to promoting clinical trials of potential therapies.

Medical Professional Education: The vast majority of medical professionals have never heard of RYR-1-RD. The RYR-1 Foundation raises awareness through resources on its website, including the latest medical literature, as well as direct meetings with medical professionals around the world.

Patient/Family Support and Advocacy: Due to the rarity of RYR-1-RD, receiving this diagnosis can be an anxiety-provoking and isolating experience for affected individuals and their families. The RYR-1 Foundation serves as a resource for patients and their families through its website, other forms of social media, and Family Conferences.

Find THE RYR-1 FOUNDATION employees' phone numbers or email addresses

THE RYR-1 FOUNDATION Global Highlights

North America
17

United States Of America
17

Asia
1

Bangladesh
1

THE RYR-1 FOUNDATION's Leadership

P. R.
Development, Public Relations, & Research Director
Mobile Phone
Email
L. G.
Executive Director & Patient Liaison
Mobile Phone
Email
E. M.
Director Of Development And Math Workshop
Mobile Phone
Email
N. U.
Chair
Mobile Phone
Email
N. B.
Community Relations
Mobile Phone
Email

THE RYR-1 FOUNDATION Employee Metrics

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Business
Entrepreneurship
Program & Project Management
Accounting
Administrative
Other
Consultant

Contact profiles from THE RYR-1 FOUNDATION

Name

Title

Contact Info

Location

Last Update

P. R.
Development, Public Relations, & Research Director
Mobile Phone
Email
United States
Sep 09, 2025
L. G.
Executive Director & Patient Liaison
Mobile Phone
Email
United StatesPennsylvania
Nov 15, 2025
E. M.
Director Of Development And Math Workshop
Mobile Phone
Email
Oct 17, 2024
N. U.
Chair
Mobile Phone
Email
UNITED STATES
Mar 07, 2023
N. B.
Community Relations
Mobile Phone
Email
Oct 22, 2024

Frequently Asked Questions

What is THE RYR-1 FOUNDATION known for?

THE RYR-1 FOUNDATION was founded in 2014 operates in the Non-profit Organizations industry. The company's main headquarters is located in Pittsburgh, Pennsylvania 15243 United States. Explore THE RYR-1 FOUNDATION's company overview page for more information.

What is THE RYR-1 FOUNDATION's most common email format?

THE RYR-1 FOUNDATION employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more THE RYR-1 FOUNDATION email formats with LeadIQ.

How many employees does THE RYR-1 FOUNDATION have currently?

THE RYR-1 FOUNDATION has approximately 8 employees as of March 2026. These team members are located across 2 continents, including North AmericaAsia.

Who are THE RYR-1 FOUNDATION's key employees and leadership?

As of March 2026, THE RYR-1 FOUNDATION's key employees include:

Development, Public Relations, & Research Director: P. R.
Executive Director & Patient Liaison: L. G.
Director Of Development And Math Workshop: E. M.
Chair: N. U.
Community Relations: N. B.

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