The XLH Network, Inc Employee Directory
Wellness and Fitness ServicesNew York, United States2-10 Employees
The XLH Network, Inc is a small nonprofit in the wellness and fitness services sector based in Albany, New York. It was founded in 1996 as an international volunteer group focused on X-Linked Hypophosphatemia and related phosphate-wasting disorders, and it is incorporated as a 501(c)(3) charity. The organization positions itself as the first global resource dedicated to XLH, offering information on diagnosis, treatment, and ongoing research through its website. It facilitates connections among patients and also links them with clinicians and researchers. Its primary audience includes individuals living with XLH and related conditions, as well as healthcare professionals and researchers seeking collaboration with the patient community. Members have access to tools that connect patients with each other and with clinicians and researchers, supporting peer interaction and access to expert guidance. The organization remains a small operation with a global reach, reflecting its roots as an international volunteer network.
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