Insights

Niche Market Global patient support organization focused on XLH and related phosphate-wasting disorders, presenting a highly specialized audience with needs around diagnosis, treatment information, and patient connectivity ideal for targeted advocacy, education platforms, and specialized medical products.

Nonprofit Platform 501(c)(3) charity with tax-deductible donations and international reach, suggesting alignment opportunities with grant programs, corporate sponsorships, and cause-related marketing partnerships.

Growing Community Membership is expanding online, providing a growing base of engaged patients and clinicians for outreach, surveys, and pilot programs, as well as potential for premium memberships or sponsored patient education resources.

Tech Stack Uses Microsoft 365, Google tools, and web technologies, indicating compatibility for enterprise collaboration solutions, donor management, CRM integrations, and website experiments to optimize outreach and fundraising.

Revenue Scale Annual revenue in the mid-range nonprofit bracket with opportunities to expand through grants, corporate partnerships, and service offerings tailored to rare disease communities and specific clinician networks.

Similar companies to The XLH Network, Inc

The XLH Network, Inc Tech Stack

The XLH Network, Inc uses 8 technology products and services including Amazon Web Services, WordPress, Shopify, and more. Explore The XLH Network, Inc's tech stack below.

The XLH Network, Inc's Email Address Formats

The XLH Network, Inc uses at least 1 email format:
The XLH Network, Inc Email FormatsExamplePercentage
First.Last@xlhnetwork.orgJohn.Doe@xlhnetwork.org
100%

Frequently Asked Questions

What is The XLH Network, Inc's phone number?

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You can contact The XLH Network, Inc's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is The XLH Network, Inc's official website and social media links?

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The XLH Network, Inc's official website is xlhnetwork.org and has social profiles on LinkedIn.

How much revenue does The XLH Network, Inc generate?

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As of September 2026, The XLH Network, Inc's annual revenue is estimated to be $1M - $10M.

What is The XLH Network, Inc's SIC code and NAICS code?

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The XLH Network, Inc's SIC code is 8399 - Social Services, Not Elsewhere Classified and NAICS code is 71394 - Fitness and Recreational Sports Centers.

How many employees does The XLH Network, Inc have currently?

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As of September 2026, The XLH Network, Inc has approximately 8 employees across 1 continents, including North America. Key team members include President: J. S., Vice President: S. S. and List Manager: E. J. Explore The XLH Network, Inc's employee directory with LeadIQ.

What industry does The XLH Network, Inc belong to?

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The XLH Network, Inc operates in the Wellness and Fitness Services industry.

What technology does The XLH Network, Inc use?

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The XLH Network, Inc's tech stack includes Amazon Web Services, WordPress, Shopify, Microsoft 365, Element UI, jQuery, ZURB Foundation and X-Content-Type-Options.

What is The XLH Network, Inc's email format?

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The XLH Network, Inc's email format typically follows the pattern of First.Last@xlhnetwork.org. Find more The XLH Network, Inc email formats with LeadIQ.

When was The XLH Network, Inc founded?

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The XLH Network, Inc was founded in 1996.
The XLH Network, Inc logo

The XLH Network, Inc

Wellness and Fitness ServicesNew York, United States2-10 Employees

The XLH Network, Inc is a small nonprofit in the wellness and fitness services sector based in Albany, New York. It was founded in 1996 as an international volunteer group focused on X-Linked Hypophosphatemia and related phosphate-wasting disorders, and it is incorporated as a 501(c)(3) charity. The organization positions itself as the first global resource dedicated to XLH, offering information on diagnosis, treatment, and ongoing research through its website. It facilitates connections among patients and also links them with clinicians and researchers.

Its primary audience includes individuals living with XLH and related conditions, as well as healthcare professionals and researchers seeking collaboration with the patient community. Members have access to tools that connect patients with each other and with clinicians and researchers, supporting peer interaction and access to expert guidance. The organization remains a small operation with a global reach, reflecting its roots as an international volunteer network.

Section iconCompany Overview

Phone number
SIC Code
8399 - Social Services, Not Elsewhere Classified
NAICS Code
71394 - Fitness and Recreational Sports Centers
Founded
1996
Employees
2-10

Section iconFunding & Financials

  • $1M - $10M

    The XLH Network, Inc's revenue is estimated to be in the range of $1M - $10M

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