Insights

Strategic Partnerships The TSC Alliance actively collaborates with biotech and pharmaceutical companies, such as Apertura Gene Therapy, TrialX, Aeovian Pharmaceuticals, and Montara Therapeutics, indicating openness to strategic alliances and co-development initiatives that could be leveraged for joint research, funding, or product distribution opportunities.

Research Funding With recent investments in rare disease-focused biotech firms and collaborations on gene therapy and targeted treatments, there is a strong potential for engaging in funding or grant opportunities aimed at advancing innovative TSC therapies and clinical research programs.

Technology Adoption The alliance utilizes advanced digital tools such as AI-powered trial finders and cloud-based security solutions, signaling opportunities to introduce innovative tech solutions, digital engagement platforms, or data management services to improve outreach and research capabilities.

Market Growth As a nonprofit serving nearly one million individuals globally with TSC, the alliance represents a substantial and growing patient community, which can be targeted for awareness campaigns, specialized medical devices, and personalized treatment solutions aligned with their mission to improve care access.

Event Sponsorship Regular participation in awareness events and fundraising initiatives such as Comedy for a Cure and Global Awareness Day demonstrates avenues for sponsorship, branded awareness campaigns, or engagement initiatives that can increase visibility within the rare disease and medical community.

TSC Alliance Tech Stack

TSC Alliance uses 8 technology products and services including Open Graph, WordPress, Cloudflare, and more. Explore TSC Alliance's tech stack below.

  • Open Graph
    Content Management System
  • WordPress
    Content Management System
  • Cloudflare
    Content Management System
  • Cookie Notice
    Cookie Compliance
  • Shopify
    E-commerce
  • Yoast SEO
    Search Engines
  • reCAPTCHA
    Security
  • Magnific Popup
    Web Tools And Plugins

Media & News

TSC Alliance's Email Address Formats

TSC Alliance uses at least 2 format(s):
TSC Alliance Email FormatsExamplePercentage
FLast@tsalliance.orgJDoe@tsalliance.org
93%
First.Last@tsalliance.orgJohn.Doe@tsalliance.org
4%
F.Last@tsalliance.orgJ.Doe@tsalliance.org
3%
FLast@tscalliance.orgJDoe@tscalliance.org
100%

Frequently Asked Questions

Where is TSC Alliance's headquarters located?

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TSC Alliance's main headquarters is located at 801 Roeder Road Suite 750 Silver Spring, Maryland 20910 United States. The company has employees across 2 continents, including North AmericaAfrica.

What is TSC Alliance's phone number?

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You can contact TSC Alliance's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is TSC Alliance's official website and social media links?

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TSC Alliance's official website is tscalliance.org and has social profiles on LinkedIn.

What is TSC Alliance's NAICS code?

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TSC Alliance's NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does TSC Alliance have currently?

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As of June 2026, TSC Alliance has approximately 57 employees across 2 continents, including North AmericaAfrica. Key team members include Chief Financial Officer: J. S.Chief Scientific Officer: S. R.Chief Financial Officer: C. T.. Explore TSC Alliance's employee directory with LeadIQ.

What industry does TSC Alliance belong to?

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TSC Alliance operates in the Non-profit Organizations industry.

What technology does TSC Alliance use?

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TSC Alliance's tech stack includes Open GraphWordPressCloudflareCookie NoticeShopifyYoast SEOreCAPTCHAMagnific Popup.

What is TSC Alliance's email format?

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TSC Alliance's email format typically follows the pattern of FLast@tsalliance.org. Find more TSC Alliance email formats with LeadIQ.

When was TSC Alliance founded?

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TSC Alliance was founded in 1974.

TSC Alliance

Non-profit OrganizationsMaryland, United States51-200 Employees

The TSC Alliance® is an internationally recognized nonprofit that does everything it takes to improve the lives of people with tuberous sclerosis complex (TSC). 

TSC is a rare genetic disease that causes tumors to grow in different organs, from the brain and heart to the lungs and kidneys to the skin and eyes. Nearly one million people worldwide have TSC. Some live independently with few symptoms while others require complex care. 

We are a source of hope and connection for all affected by TSC. We drive research, increase care quality and access and advocate with and for people affected by the disease. Through our collaboration and partnerships, we’ve advanced FDA-approved treatments and created support systems around the world so that no one has to navigate TSC alone.

The TSC community is our strongest ally. With the power of families and the support of donors, volunteers, researchers, educators, industry partners, and more, we can create a future where everyone with TSC can realize their full potential—no matter how complex their journeys are to get there. 

Join us at tscalliance.org or contact us at info@tscalliance.org.

Section iconCompany Overview

Headquarters
801 Roeder Road Suite 750 Silver Spring, Maryland 20910 United States
Phone number
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
1974
Employees
51-200

Section iconFunding & Financials

  • $25M$50M

    TSC Alliance's revenue is estimated to be in the range of $25M$50M

Section iconFunding & Financials

  • $25M$50M

    TSC Alliance's revenue is estimated to be in the range of $25M$50M

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