Insights

Funding Potential ULF is a nonprofit funded entirely by donations with a sizable revenue range of hundreds of millions. This indicates strong fundraising capabilities and potential for partnerships, sponsorships, and grant programs aligned with donor-driven campaigns and major gift opportunities.

Executive Leadership Recent leadership appointment of an Executive Director signals strategic pivots or expanded initiatives. This presents an opening for outreach to align alliance opportunities, program funding, and collaborative ventures with the new leadership's priorities.

Technology Stack Current tech stack includes WordPress, analytics, and search tools, suggesting openness to digital fundraising enhancements, website optimization, CRM, and data-driven donor engagement solutions to boost online fundraising efficiency.

Education & Outreach ULF focuses on information dissemination, family support networks, and professional education. Opportunities exist for partnerships in patient education platforms, toll-free helplines, webinar series, and medical outreach programs that leverage your audience.

Scale & Impact With 11-50 employees and a mission to advance research into leukodystrophies, there is room to offer program management services, grant administration, and volunteer management solutions to scale impact while maintaining donor trust.

Similar companies to United Leukodystrophy Foundation

United Leukodystrophy Foundation Tech Stack

United Leukodystrophy Foundation uses 8 technology products and services including Amazon Web Services, RSS, Microsoft 365, and more. Explore United Leukodystrophy Foundation's tech stack below.

  • Amazon Web Services
    Cloud Hosting
  • RSS
    Content Management System
  • Microsoft 365
    Email
  • Twemoji
    Font Scripts
  • X-XSS-Protection
    Security
  • Google Analytics
    Web Analytics
  • Gutenberg Blocks
    Web Platform Extensions
  • OpenResty
    Web Servers

United Leukodystrophy Foundation's Email Address Formats

United Leukodystrophy Foundation uses at least 1 format(s):
United Leukodystrophy Foundation Email FormatsExamplePercentage
First@ulf.orgJohn@ulf.org
80%
FirstLast@ulf.orgJohnDoe@ulf.org
20%

Frequently Asked Questions

What is United Leukodystrophy Foundation's official website and social media links?

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United Leukodystrophy Foundation's official website is ulf.org and has social profiles on LinkedIn.

How much revenue does United Leukodystrophy Foundation generate?

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As of July 2026, United Leukodystrophy Foundation's annual revenue is estimated to be $100M - $250M.

What is United Leukodystrophy Foundation's SIC code NAICS code?

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United Leukodystrophy Foundation's SIC code is 7389 - Business Services, Not Elsewhere Classified NAICS code is 561499 - All Other Business Support Services.

How many employees does United Leukodystrophy Foundation have currently?

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As of July 2026, United Leukodystrophy Foundation has approximately 11 employees across 1 continents, including North America. Key team members include Executive Director: C. R.Director Of Operations: K. H.Director Of Donor Relations: R. R.. Explore United Leukodystrophy Foundation's employee directory with LeadIQ.

What industry does United Leukodystrophy Foundation belong to?

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United Leukodystrophy Foundation operates in the Fundraising industry.

What technology does United Leukodystrophy Foundation use?

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United Leukodystrophy Foundation's tech stack includes Amazon Web ServicesRSSMicrosoft 365TwemojiX-XSS-ProtectionGoogle AnalyticsGutenberg BlocksOpenResty.

What is United Leukodystrophy Foundation's email format?

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United Leukodystrophy Foundation's email format typically follows the pattern of First@ulf.org. Find more United Leukodystrophy Foundation email formats with LeadIQ.

When was United Leukodystrophy Foundation founded?

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United Leukodystrophy Foundation was founded in 1983.
United Leukodystrophy Foundation logo

United Leukodystrophy Foundation

FundraisingIllinois, United States11-50 Employees

The United Leukodystrophy Foundation, a nonprofit organization founded in 1982, focuses on leukodystrophies, a set of genetic nervous system disorders affecting the myelin sheath. It provides patients and families with information and assistance in locating medical care, social services, and genetic counseling, while fostering a network among affected families. It also serves as an information source for healthcare providers and supports research into causes, treatments, and prevention.

Based in Dekalb, Illinois, the foundation operates as a small nonprofit funded solely by donations. In addition to patient support, it acts as an information resource for healthcare providers and works to raise public awareness about leukodystrophies. In September 2023, the organization announced the appointment of Diane Fennimore as its Executive Director, marking a notable leadership development.

Section iconCompany Overview

Website
ulf.org
SIC Code
7389 - Business Services, Not Elsewhere Classified
NAICS Code
561499 - All Other Business Support Services
Founded
1983
Employees
11-50

Section iconFunding & Financials

  • $100M - $250M

    United Leukodystrophy Foundation's revenue is estimated to be in the range of $100M - $250M

Section iconFunding & Financials

  • $100M - $250M

    United Leukodystrophy Foundation's revenue is estimated to be in the range of $100M - $250M

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