Insights

Nonprofit scale High revenue range for a nonprofit suggests strong fundraising capacity and potential for large grant collaborations, corporate sponsorships, and donor management software or services required to support expanded campaigns.

Executive leadership Recent appointment of an Executive Director indicates leadership change and potential openness to strategic partnerships, consulting services, and new program initiatives aligned with organizational growth.

Tech stack Utilizes cloud hosting, CMS, ecommerce and security tools (AWS, WordPress, Shopify, Sucuri) which signals readiness for digital fundraising upgrades, donor experience improvements, and integrated analytics implementations.

Mission focus Specialized disease focus on leukodystrophies positions opportunities in targeted patient support platforms, genetic counseling services partnerships, medical information portals, and research collaboration tools.

Funding model Solely donation-supported funding model suggests strong opportunity for fundraising platform providers, donor CRM, recurring giving programs, and grant management solutions to optimize revenue.

Similar companies to United Leukodystrophy Foundation

United Leukodystrophy Foundation Tech Stack

United Leukodystrophy Foundation uses 8 technology products and services including Amazon Web Services, Sucuri, RSS, and more. Explore United Leukodystrophy Foundation's tech stack below.

United Leukodystrophy Foundation's Email Address Formats

United Leukodystrophy Foundation uses at least 2 email formats:
United Leukodystrophy Foundation Email FormatsExamplePercentage
First@ulf.orgJohn@ulf.org
80%
FirstLast@ulf.orgJohnDoe@ulf.org
20%

Frequently Asked Questions

What is United Leukodystrophy Foundation's official website and social media links?

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United Leukodystrophy Foundation's official website is ulf.org and has social profiles on LinkedIn.

How much revenue does United Leukodystrophy Foundation generate?

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As of September 2026, United Leukodystrophy Foundation's annual revenue is estimated to be $100M - $250M.

What is United Leukodystrophy Foundation's SIC code and NAICS code?

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United Leukodystrophy Foundation's SIC code is 7389 - Business Services, Not Elsewhere Classified and NAICS code is 561499 - All Other Business Support Services.

How many employees does United Leukodystrophy Foundation have currently?

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As of September 2026, United Leukodystrophy Foundation has approximately 12 employees across 1 continents, including North America. Key team members include Executive Director: C. R., Director Of Donor Relations: R. R. and Operations Assistant: T. E. Explore United Leukodystrophy Foundation's employee directory with LeadIQ.

What industry does United Leukodystrophy Foundation belong to?

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United Leukodystrophy Foundation operates in the Fundraising industry.

What technology does United Leukodystrophy Foundation use?

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United Leukodystrophy Foundation's tech stack includes Amazon Web Services, Sucuri, RSS, WordPress, Shopify, Microsoft 365, JSON-LD and Bootstrap.

What is United Leukodystrophy Foundation's email format?

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United Leukodystrophy Foundation's email format typically follows the pattern of First@ulf.org. Find more United Leukodystrophy Foundation email formats with LeadIQ.

When was United Leukodystrophy Foundation founded?

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United Leukodystrophy Foundation was founded in 1983.
United Leukodystrophy Foundation logo

United Leukodystrophy Foundation

FundraisingIllinois, United States11-50 Employees

The United Leukodystrophy Foundation, a nonprofit organization founded in 1982, focuses on leukodystrophies, a set of genetic nervous system disorders affecting the myelin sheath. It provides patients and families with information and assistance in locating medical care, social services, and genetic counseling, while fostering a network among affected families. It also serves as an information source for healthcare providers and supports research into causes, treatments, and prevention.

Based in Dekalb, Illinois, the foundation operates as a small nonprofit funded solely by donations. In addition to patient support, it acts as an information resource for healthcare providers and works to raise public awareness about leukodystrophies. In September 2023, the organization announced the appointment of Diane Fennimore as its Executive Director, marking a notable leadership development.

Section iconCompany Overview

Website
ulf.org
SIC Code
7389 - Business Services, Not Elsewhere Classified
NAICS Code
561499 - All Other Business Support Services
Founded
1983
Employees
11-50

Section iconFunding & Financials

  • $100M - $250M

    United Leukodystrophy Foundation's revenue is estimated to be in the range of $100M - $250M

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