United Leukodystrophy Foundation Employee Directory

Q: What is United Leukodystrophy Foundation known for?

United Leukodystrophy Foundation was founded in 1983. United Leukodystrophy Foundation operates in the Fundraising industry.

FundraisingUnited States11-50 Employees

The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to providing patients and their families with information about the disease and with  assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for healthcare providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. Leukodystrophies make up a group of genetic, nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted. The ULF is supported solely by donations.

Find United Leukodystrophy Foundation employees' phone numbers or email addresses

United Leukodystrophy Foundation Global Highlights

North America
16

United States Of America
16

United Leukodystrophy Foundation's Leadership

B. B.
Executive Director
Mobile Phone
Email
C. R.
Executive Director
Mobile Phone
Email
K. H.
Director Of Operations
Mobile Phone
Email
R. R.
Director Of Donor Relations
Mobile Phone
Email
A. N. F.
Board Member
Mobile Phone
Email
N. B.
Member
Mobile Phone
Email
T. L.
Medical And Scientific Advisory Board
Mobile Phone
Email
T. E.
Operations Assistant
Mobile Phone
Email

Contact profiles from United Leukodystrophy Foundation

Name

Title

Contact Info

Location

Last Update

B. B.
Executive Director
Mobile Phone
Email
United States
Aug 05, 2024
C. R.
Executive Director
Mobile Phone
Email
Oct 23, 2024
K. H.
Director Of Operations
Mobile Phone
Email
Oct 17, 2024
R. R.
Director Of Donor Relations
Mobile Phone
Email
Oct 21, 2024
A. N. F.
Board Member
Mobile Phone
Email
United StatesTexas
Nov 05, 2025
N. B.
Member
Mobile Phone
Email
United StatesConnecticut
Oct 21, 2025
T. L.
Medical And Scientific Advisory Board
Mobile Phone
Email
United StatesMinnesota
Oct 17, 2025
T. E.
Operations Assistant
Mobile Phone
Email
Jul 29, 2025

Frequently Asked Questions

What is United Leukodystrophy Foundation known for?

United Leukodystrophy Foundation was founded in 1983 operates in the Fundraising industry. The company's main headquarters is located in 224 N. Second Street, Suite 2, DeKalb, IL 60115, US. Explore United Leukodystrophy Foundation's company overview page for more information.

What is United Leukodystrophy Foundation's most common email format?

United Leukodystrophy Foundation employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more United Leukodystrophy Foundation email formats with LeadIQ.

How many employees does United Leukodystrophy Foundation have currently?

United Leukodystrophy Foundation has approximately 12 employees as of October 2025. These team members are located across 1 continents, including North America.

Who are United Leukodystrophy Foundation's key employees and leadership?

As of October 2025, United Leukodystrophy Foundation's key employees include:

Executive Director: B. B.
Executive Director: C. R.
Director Of Operations: K. H.
Director Of Donor Relations: R. R.
Board Member: A. N. F.

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