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United Leukodystrophy Foundation logo

United Leukodystrophy Foundation Employee Directory

FundraisingIllinois, United States11-50 Employees

The United Leukodystrophy Foundation, a nonprofit organization founded in 1982, focuses on leukodystrophies, a set of genetic nervous system disorders affecting the myelin sheath. It provides patients and families with information and assistance in locating medical care, social services, and genetic counseling, while fostering a network among affected families. It also serves as an information source for healthcare providers and supports research into causes, treatments, and prevention.

Based in Dekalb, Illinois, the foundation operates as a small nonprofit funded solely by donations. In addition to patient support, it acts as an information resource for healthcare providers and works to raise public awareness about leukodystrophies. In September 2023, the organization announced the appointment of Diane Fennimore as its Executive Director, marking a notable leadership development.

Find United Leukodystrophy Foundation employees' phone numbers or email addresses

United Leukodystrophy Foundation Global Highlights

Location
Employees

North America
12

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  • United States Of America
    12

United Leukodystrophy Foundation's Leadership

  • Executive Director at United Leukodystrophy Foundation
    C. R.
    Executive Director
    Mobile Phone
  • Director Of Donor Relations at United Leukodystrophy Foundation
    R. R.
    Director Of Donor Relations
    Mobile Phone
  • Operations Assistant at United Leukodystrophy Foundation
    T. E.
    Operations Assistant
    Mobile Phone

United Leukodystrophy Foundation Employee Metrics

100%
50%
0%
2026
2025
  • Entrepreneurship
  • Consultant
  • Business
  • Community & Social Services
  • Other

Contact profiles from United Leukodystrophy Foundation

Name
Title
Contact
Location
Last Update
  • Executive Director at United Leukodystrophy Foundation
    C. R.
    Executive Director
    Mobile Phone
    Oct 23, 2024
  • Director Of Donor Relations at United Leukodystrophy Foundation
    R. R.
    Director Of Donor Relations
    Mobile Phone
    Oct 21, 2024
  • Operations Assistant at United Leukodystrophy Foundation
    T. E.
    Operations Assistant
    Mobile Phone
    Jul 29, 2025

Frequently Asked Questions

What is United Leukodystrophy Foundation known for?

Minus sign iconPlus sign iconUnited Leukodystrophy Foundation was founded in 1983 and operates in the Fundraising industry. Explore United Leukodystrophy Foundation's company overview page for more information.

What is United Leukodystrophy Foundation's most common email format?

Minus sign iconPlus sign iconUnited Leukodystrophy Foundation employees' email format typically follows the pattern of First@ulf.org. Trying to find reliable and up-to-date employee contact data? Find more United Leukodystrophy Foundation email formats with LeadIQ.

How many employees does United Leukodystrophy Foundation have currently?

Minus sign iconPlus sign iconUnited Leukodystrophy Foundation has approximately 12 employees as of September 2026. These team members are located across 1 continents, including North America.

Who are United Leukodystrophy Foundation's key employees and leadership?

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As of September 2026, United Leukodystrophy Foundation's key employees include:

  • Executive Director: C. R.
  • Director Of Donor Relations: R. R.
  • Operations Assistant: T. E.

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