Insights

Partnership Growth VHL Alliance actively expands collaboration with major medical centers and research institutions (UT Southwestern, University of Michigan, VHL Research Forum). This presents ongoing opportunities to offer specialized wellness programs, educational content libraries, research support platforms, and patient education tools tailored to rare disease communities.

Fundraising Potential With established donor programs like Warrior Pledge and a mid-sized revenue range, there is room to introduce donor management software, CRM integration, and targeted philanthropy campaigns to streamline giving, event management, and donor stewardship for increased contributions.

Tech Stack Fit Current technology usage (Google Workspace, web performance tools, analytics libraries) indicates openness to cloud-based collaboration, patient education portals, and data visualization for research outcomes; sales opportunities include secure patient portals, performance monitoring dashboards, and integrated content delivery.

Sponsorship & Education Active in education and awareness initiatives with conferences and family weekends suggests demand for sponsorship packages, event management platforms, and multilingual or accessible education materials that scale across partners and attendees.

Scale & Reach Growth indicators like partnerships with prominent universities, national forums, and a broader national footprint imply need for scalable CRM, donor analytics, and content distribution solutions to support increased outreach, stakeholder coordination, and fundraising efficiency.

Similar companies to VHL Alliance

VHL Alliance Tech Stack

VHL Alliance uses 8 technology products and services including Google Workspace, Google Fonts API, GSAP, and more. Explore VHL Alliance's tech stack below.

  • Google Workspace
    Email
  • Google Fonts API
    Font Scripts
  • GSAP
    Javascript Frameworks
  • Chart.js
    Javascript Graphics
  • Underscore.js
    Javascript Libraries
  • HSTS
    Security
  • Endurance Page Cache
    Web Platform Extensions
  • Apache HTTP Server
    Web Servers

Media & News

VHL Alliance's Email Address Formats

VHL Alliance uses at least 1 format(s):
VHL Alliance Email FormatsExamplePercentage
First.Last@vhl.orgJohn.Doe@vhl.org
80%
First@vhl.orgJohn@vhl.org
13%
Last@vhl.orgDoe@vhl.org
7%

Frequently Asked Questions

Where is VHL Alliance's headquarters located?

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VHL Alliance's main headquarters is located at po Box 844682 Boston, Massachusetts 02284 United States. The company has employees across 3 continents, including North AmericaEuropeSouth America.

What is VHL Alliance's phone number?

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You can contact VHL Alliance's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is VHL Alliance's official website and social media links?

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VHL Alliance's official website is vhl.org and has social profiles on LinkedIn.

What is VHL Alliance's NAICS code?

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VHL Alliance's NAICS code is 71394 - Fitness and Recreational Sports Centers.

How many employees does VHL Alliance have currently?

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As of June 2026, VHL Alliance has approximately 25 employees across 3 continents, including North AmericaEuropeSouth America. Key team members include Board Director: K. M.Director Of Communications & Marketing: A. B.Executive Director: J. T.. Explore VHL Alliance's employee directory with LeadIQ.

What industry does VHL Alliance belong to?

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VHL Alliance operates in the Wellness and Fitness Services industry.

What technology does VHL Alliance use?

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VHL Alliance's tech stack includes Google WorkspaceGoogle Fonts APIGSAPChart.jsUnderscore.jsHSTSEndurance Page CacheApache HTTP Server.

What is VHL Alliance's email format?

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VHL Alliance's email format typically follows the pattern of First.Last@vhl.org. Find more VHL Alliance email formats with LeadIQ.

When was VHL Alliance founded?

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VHL Alliance was founded in 1993.
VHL Alliance logo

VHL Alliance

Wellness and Fitness ServicesMassachusetts, United States11-50 Employees

The VHL Alliance is a wellness-focused organization centered on von Hippel-Lindau disease, concentrating on research, education, and support. Its mission is to improve awareness, diagnosis, and treatment, as well as the overall quality of life for those affected. The organization engages patients, families, clinicians, and researchers, serving as a bridge between the rare-disease community and medical professionals. Based in Boston, Massachusetts, it operates with a small-to-mid-sized team. Recent developments include a 2026 partnership with UT Southwestern Medical Center to collaborate with academic centers and connect families, clinicians, and researchers.

Section iconCompany Overview

Headquarters
po Box 844682 Boston, Massachusetts 02284 United States
Phone number
Website
vhl.org
NAICS Code
71394 - Fitness and Recreational Sports Centers
Founded
1993
Employees
11-50

Section iconFunding & Financials

  • $1M$10M

    VHL Alliance's revenue is estimated to be in the range of $1M$10M

Section iconFunding & Financials

  • $1M$10M

    VHL Alliance's revenue is estimated to be in the range of $1M$10M

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