Insights

Strategic Partnerships VHL Alliance actively engages with major academic and research institutions, including UT Southwestern Medical Center and the University of Michigan, presenting partnership opportunities for research funding, educational programs, patient advocacy initiatives, and joint fundraising efforts.

Fundraising Growth Historical expansion of donor programs (e.g., Warrior Pledge) and year-over-year event-driven engagement suggest a receptive base for donor management solutions, CRM optimization, and digital fundraising platforms to scale contributions.

Tech Stack Synergy Existing tools such as WordPress, Zendesk, Google Workspace, and analytics-ready platforms indicate openness to integrated content, support workflows, and secure communications—presenting opportunities for marketing automation, CRM enhancements, and data security services.

Research Focus A strong emphasis on research collaboration and knowledge dissemination signals demand for grant management, clinical trial coordination, and secure data-sharing solutions that streamline partnerships with universities and pharmaceutical stakeholders.

Industry Networking Participation in research forums, rare-disease advocacy, and partnerships with industry players (e.g., Elsevier collaboration) shows a market for conference enablement, sponsorship packages, and content licensing or educational program development.

Similar companies to VHL Alliance

VHL Alliance Tech Stack

VHL Alliance uses 8 technology products and services including WordPress, Zendesk, Google Workspace, and more. Explore VHL Alliance's tech stack below.

  • Content Management System
  • Documentation Tools
  • Google Fonts API
    Font Scripts
  • React
    Javascript Frameworks
  • Envoy
    Load Balancers
  • Security
  • GlobalSign
    System Security Services

Media & News

VHL Alliance's Email Address Formats

VHL Alliance uses at least 3 email formats:
VHL Alliance Email FormatsExamplePercentage
First.Last@vhl.orgJohn.Doe@vhl.org
80%
First@vhl.orgJohn@vhl.org
13%
Last@vhl.orgDoe@vhl.org
7%

Frequently Asked Questions

What is VHL Alliance's phone number?

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You can contact VHL Alliance's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is VHL Alliance's official website and social media links?

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VHL Alliance's official website is vhl.org and has social profiles on LinkedIn.

How much revenue does VHL Alliance generate?

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As of August 2026, VHL Alliance's annual revenue is estimated to be $1M - $10M.

What is VHL Alliance's NAICS code?

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VHL Alliance's NAICS code is 71394 - Fitness and Recreational Sports Centers.

How many employees does VHL Alliance have currently?

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As of August 2026, VHL Alliance has approximately 23 employees across 4 continents, including North America, Asia and Europe. Key team members include Director: C. F., Chair In Non Profit Org.Vhlfa Alliance Greece: A. A. and Secretary: E. B. Explore VHL Alliance's employee directory with LeadIQ.

What industry does VHL Alliance belong to?

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VHL Alliance operates in the Wellness and Fitness Services industry.

What technology does VHL Alliance use?

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VHL Alliance's tech stack includes WordPress, Zendesk, Google Workspace, Google Fonts API, React, Envoy, Imperva and GlobalSign.

What is VHL Alliance's email format?

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VHL Alliance's email format typically follows the pattern of First.Last@vhl.org. Find more VHL Alliance email formats with LeadIQ.

When was VHL Alliance founded?

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VHL Alliance was founded in 1993.
VHL Alliance logo

VHL Alliance

Wellness and Fitness ServicesMassachusetts, United States11-50 Employees

The VHL Alliance is a wellness-focused organization centered on von Hippel-Lindau disease, concentrating on research, education, and support. Its mission is to improve awareness, diagnosis, and treatment, as well as the overall quality of life for those affected. The organization engages patients, families, clinicians, and researchers, serving as a bridge between the rare-disease community and medical professionals. Based in Boston, Massachusetts, it operates with a small-to-mid-sized team. Recent developments include a 2026 partnership with UT Southwestern Medical Center to collaborate with academic centers and connect families, clinicians, and researchers.

Section iconCompany Overview

Phone number
Website
vhl.org
NAICS Code
71394 - Fitness and Recreational Sports Centers
Founded
1993
Employees
11-50

Section iconFunding & Financials

  • $1M - $10M

    VHL Alliance's revenue is estimated to be in the range of $1M - $10M

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