VHL Alliance Employee Directory
Wellness and Fitness ServicesMassachusetts, United States11-50 Employees
The VHL Alliance is a wellness-focused organization centered on von Hippel-Lindau disease, concentrating on research, education, and support. Its mission is to improve awareness, diagnosis, and treatment, as well as the overall quality of life for those affected. The organization engages patients, families, clinicians, and researchers, serving as a bridge between the rare-disease community and medical professionals. Based in Boston, Massachusetts, it operates with a small-to-mid-sized team. Recent developments include a 2026 partnership with UT Southwestern Medical Center to collaborate with academic centers and connect families, clinicians, and researchers.