WORLDWIDE RARE DISEASE TASK FORCE

Higher EducationGeorgia, United States0-1 Employees

Worldwide Rare Disease Task Force is a 501c3 nonprofit organization led by medical professionals.  Our mission is to educate the world about the all rare diseases. Our focus is to provide updated education to all medical specialties about these diseases through online webinars with videos and delivery of in-services taught by registered nurses.  We provide our members as well as medical professionals excellent resources to navigate rare diseases like Syringomyelia and Chiari with an emphasis on collaboration and continuity of care across all medical specialties using patient-centered approaches that center on our mission of education.  Overall, our desire is to increase understanding among all medical specialties while helping to improve the overall quality of life for children and adults living with rare diseases.  

We provide free services to our members including 24 hour online support  moderated by registered nurses, information about free flight services, on staff nurses for education and advocacy requests, publishing opportunities with our community and medical publishing opportunities through our partners, and so much more!  Join today...it's free!

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