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WORLDWIDE RARE DISEASE TASK FORCE Employee Directory

Higher EducationGeorgia, United States0-1 Employees

Worldwide Rare Disease Task Force is a 501c3 nonprofit based in Lawrenceville, Georgia, led by medical professionals. The organization seeks to educate the global medical community about rare diseases by delivering current content to multiple specialties through online webinars, accompanying videos, and in-services led by registered nurses. It provides resources to both members and medical professionals to navigate conditions such as Syringomyelia and Chiari, emphasizing collaboration and continuity of care across specialties with a patient-centered focus on education.

As a small organization operating in the higher education space, it offers free services to members, including 24-hour online support moderated by registered nurses, information about free flight services, and availability of on-staff nurses for education and advocacy requests. The group also supports publishing opportunities for its community and through partner medical publishers. Overall, the mission centers on improving understanding across medical specialties to enhance the quality of life for children and adults living with rare diseases.

Find WORLDWIDE RARE DISEASE TASK FORCE employees' phone numbers or email addresses

WORLDWIDE RARE DISEASE TASK FORCE Global Highlights

Location
Employees

North America
2

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  • United States Of America
    2

WORLDWIDE RARE DISEASE TASK FORCE's Leadership

  • Stylized image of a person
    E. N.
    Founder
    Phone icon
    Mobile Phone

WORLDWIDE RARE DISEASE TASK FORCE Employee Metrics

100%
50%
0%
2026
2025
  • Business
  • Accounting
  • Administrative
  • Analytics
  • Arts & Design
  • Other

Contact profiles from WORLDWIDE RARE DISEASE TASK FORCE

Name
Title
Contact Info
Location
Last Update
  • Stylized image of a person
    E. N.
    Founder
    Phone icon
    Mobile Phone
    United StatesGeorgia
    Mar 24, 2026

Frequently Asked Questions

What is WORLDWIDE RARE DISEASE TASK FORCE known for?

Minus sign iconPlus sign iconWORLDWIDE RARE DISEASE TASK FORCE was founded in 2014 operates in the Higher Education industry. The company's main headquarters is located in Lawrenceville, Georgia 30043 United States. Explore WORLDWIDE RARE DISEASE TASK FORCE's company overview page for more information.

What is WORLDWIDE RARE DISEASE TASK FORCE's most common email format?

Minus sign iconPlus sign iconWORLDWIDE RARE DISEASE TASK FORCE employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more WORLDWIDE RARE DISEASE TASK FORCE email formats with LeadIQ.

How many employees does WORLDWIDE RARE DISEASE TASK FORCE have currently?

Minus sign iconPlus sign iconWORLDWIDE RARE DISEASE TASK FORCE has approximately 1 employees as of May 2026. These team members are located across 1 continents, including North America.

Who are WORLDWIDE RARE DISEASE TASK FORCE's key employees and leadership?

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As of May 2026, WORLDWIDE RARE DISEASE TASK FORCE's key employees include:

  • Founder: E. N.

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