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Insights

Global reach Non-profit dedicated to Barth syndrome with a worldwide volunteer network, presenting opportunities for international partnerships, donor engagement programs, and cross-border fundraising collaborations.

Grant potential Recent $800k Chan Zuckerberg Initiative funding signals openness to large grants and structured program support, suggesting readiness for collaboration on research, treatment education, and rare disease initiatives.

Tech enablement Technology stack includes AWS, Office 365, Google Tag Manager, Cloudflare, and web functionality, indicating readiness for cloud-based donor portals, data analytics, and digital campaigns.

Strategic allies Recent partnership with Mito Foundation highlights appetite for alliances with other rare disease organizations, creating potential co-funding, joint awareness campaigns, and shared program delivery.

Leadership signals New Chief Science Officer appointment in recent years and a targeted research-oriented program (Arrhythmia Project) imply opportunities to offer research support services, data partnerships, and clinical education tools.

Similar companies to Barth Syndrome Foundation

Barth Syndrome Foundation Tech Stack

Barth Syndrome Foundation uses 8 technology products and services including Hotjar, Microsoft Clarity, Amazon Web Services, and more. Explore Barth Syndrome Foundation's tech stack below.

Barth Syndrome Foundation's Email Address Formats

Barth Syndrome Foundation uses at least 2 email formats:
Barth Syndrome Foundation Email FormatsExamplePercentage
First.Last@barthsyndrome.orgJohn.Doe@barthsyndrome.org
80%
FLast@barthsyndrome.orgJDoe@barthsyndrome.org
20%

Frequently Asked Questions

What is Barth Syndrome Foundation's phone number?

Minus sign iconPlus sign icon You can contact Barth Syndrome Foundation's main corporate office by phone at
+1-914-303-****
. For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Barth Syndrome Foundation's official website and social media links?

Minus sign iconPlus sign iconBarth Syndrome Foundation's official website is barthsyndrome.org and has social profiles on LinkedIn.

How much revenue does Barth Syndrome Foundation generate?

Minus sign iconPlus sign icon As of September 2026, Barth Syndrome Foundation's annual revenue is estimated to be $1M - $10M.

What is Barth Syndrome Foundation's SIC code and NAICS code?

Minus sign iconPlus sign iconBarth Syndrome Foundation's SIC code is 6732 - Educational, Religious, and Charitable Trusts and NAICS code is 813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations.

How many employees does Barth Syndrome Foundation have currently?

Minus sign iconPlus sign iconAs of September 2026, Barth Syndrome Foundation has approximately 15 employees across 2 continents, including North America and Europe. Key team members include Chief Scientific Officer: L. M., Board Of Directors: K. W. and Chairman: S. M. Explore Barth Syndrome Foundation's employee directory with LeadIQ.

What industry does Barth Syndrome Foundation belong to?

Minus sign iconPlus sign iconBarth Syndrome Foundation operates in the Non-profit Organizations industry.

What technology does Barth Syndrome Foundation use?

Minus sign iconPlus sign iconBarth Syndrome Foundation's tech stack includes Hotjar, Microsoft Clarity, Amazon Web Services, Microsoft 365, Intercom, Trustpilot, Datadog and Vimeo.

What is Barth Syndrome Foundation's email format?

Minus sign iconPlus sign iconBarth Syndrome Foundation's email format typically follows the pattern of First.Last@barthsyndrome.org. Find more Barth Syndrome Foundation email formats with LeadIQ.

When was Barth Syndrome Foundation founded?

Minus sign iconPlus sign iconBarth Syndrome Foundation was founded in 2000.
Barth Syndrome Foundation logo

Barth Syndrome Foundation

Non-profit OrganizationsMassachusetts, United States11-50 Employees

The Barth Syndrome Foundation is a nonprofit organization based in Cambridge, Massachusetts. It is the world's only volunteer-led organization dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome. The foundation's activities center on educational initiatives and efforts to advance research related to Barth syndrome.

In August 2023, the organization announced the launch of the Barth Syndrome Arrhythmia Project. Earlier, in 2019, it announced the appointment of a Chief Science Officer. The foundation operates as a small to mid-sized nonprofit based in Cambridge.

Section iconCompany Overview

Phone number
+1-914-303-****
Website
barthsyndrome.org
SIC Code
6732 - Educational, Religious, and Charitable Trusts
NAICS Code
813 - Religious, Grantmaking, Civic, Professional, and Similar Organizations
Founded
2000
Employees
11-50

Section iconMedia & News

Section iconFunding & Financials

  • $1M - $10M

    Barth Syndrome Foundation's revenue is estimated to be in the range of $1M - $10M

Company Leadership

  • Chief Scientific Officer at Barth Syndrome Foundation
    L. M.
    Chief Scientific Officer
    Mobile Phone
  • Board Of Directors at Barth Syndrome Foundation
    K. W.
    Board Of Directors
    Mobile Phone
  • Chairman at Barth Syndrome Foundation
    S. M.
    Chairman
    Mobile Phone
  • Scientific And Medical Advisory Board Member at Barth Syndrome Foundation
    R. H.
    Scientific And Medical Advisory Board Member
    Mobile Phone

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