Barth Syndrome Foundation logo

Barth Syndrome Foundation Employee Directory

Non-profit OrganizationsMassachusetts, United States11-50 Employees

The Barth Syndrome Foundation is a nonprofit organization based in Cambridge, Massachusetts. It is the world's only volunteer-led organization dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome. The foundation's activities center on educational initiatives and efforts to advance research related to Barth syndrome.

In August 2023, the organization announced the launch of the Barth Syndrome Arrhythmia Project. Earlier, in 2019, it announced the appointment of a Chief Science Officer. The foundation operates as a small to mid-sized nonprofit based in Cambridge.

Find Barth Syndrome Foundation employees' phone numbers or email addresses

Barth Syndrome Foundation Global Highlights

Location
Employees

North America
15

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  • United States Of America
    15

Europe
1

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  • Netherlands
    1

Barth Syndrome Foundation's Leadership

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    L. M.
    Chief Scientific Officer
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    S. M.
    Chairman
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    S. B.
    Director, Family Services And Advocacy
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    J. L.
    Director Of Development
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    M. T.
    Science Director
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    V. B.
    Director Of Family Services And Awareness
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    E. M.
    Development And Stewardship Manager
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    R. H.
    Scientific And Medical Advisory Board Member
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Barth Syndrome Foundation Employee Metrics

100%
50%
0%
2026
2025
  • Business
  • Entrepreneurship
  • Administrative
  • Accounting
  • Analytics
  • Other
  • Consultant
  • Business Development

Contact profiles from Barth Syndrome Foundation

Name
Title
Contact Info
Location
Last Update
  • Stylized image of a person
    K. W.
    Board Of Directors
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    Oct 22, 2024

Frequently Asked Questions

What is Barth Syndrome Foundation known for?

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Barth Syndrome Foundation was founded in 2000 operates in the Non-profit Organizations industry. The company's main headquarters is located in Cambridge, Massachusetts 02142 United States; you can contact the main corporate office by phone at . Explore Barth Syndrome Foundation's company overview page for more information.

What is Barth Syndrome Foundation's most common email format?

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Barth Syndrome Foundation employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more Barth Syndrome Foundation email formats with LeadIQ.

How many employees does Barth Syndrome Foundation have currently?

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Barth Syndrome Foundation has approximately 14 employees as of June 2026. These team members are located across 2 continents, including North AmericaEurope.

Who are Barth Syndrome Foundation's key employees and leadership?

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As of June 2026, Barth Syndrome Foundation's key employees include:

  • Chief Scientific Officer: L. M.
  • Chairman: S. M.
  • Director, Family Services And Advocacy: S. B.
  • Director Of Development: J. L.
  • Science Director: M. T.

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