Barth Syndrome Foundation Employee Directory
Non-profit OrganizationsMassachusetts, United States11-50 Employees
The Barth Syndrome Foundation is a nonprofit organization based in Cambridge, Massachusetts. It is the world's only volunteer-led organization dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome. The foundation's activities center on educational initiatives and efforts to advance research related to Barth syndrome. In August 2023, the organization announced the launch of the Barth Syndrome Arrhythmia Project. Earlier, in 2019, it announced the appointment of a Chief Science Officer. The foundation operates as a small to mid-sized nonprofit based in Cambridge.