Insights

Focused cystinosis research Small nonprofit dedicated to funding bench and clinical cystinosis research, offering opportunities for research grant programs and partnerships with life sciences vendors to support grant administration, data collection, and dissemination.

Strategic funding cadence Bi-annual grant cycles create recurring engagement windows for sponsors, CROs, and academic collaborators to align services, impact metrics, and reporting capabilities.

Educational outreach Commitment to public and medical community education suggests opportunities for partnering with medical communications firms, patient advocacy outreach platforms, and education technology providers to amplify awareness and diagnosis pathways.

Financial footprint Revenue and funding in the low-to-mid millions indicate a budget-conscious partner with potential needs for cost-effective research tools, grant management software, and philanthropic giving services.

Industry alignment Connections to rare disease networks and similar foundations imply potential for collaboration with broader rare disease consortia, fundraising platforms, and data-sharing ecosystems to accelerate research initiatives.

Cystinosis Research Foundation Tech Stack

Cystinosis Research Foundation uses 8 technology products and services including Microsoft 365, Swiper, Cloudflare Bot Management, and more. Explore Cystinosis Research Foundation's tech stack below.

  • Microsoft 365
    Email
  • Swiper
    Javascript Libraries
  • Cloudflare Bot Management
    Security
  • Bootstrap
    UI Frameworks
  • X-Content-Type-Options
    Web & Portal Technology
  • Gravity Forms
    Web Platform Extensions
  • Astra
    Web Platform Extensions
  • Nginx
    Web Servers

Cystinosis Research Foundation's Email Address Formats

Cystinosis Research Foundation uses at least 1 format(s):
Cystinosis Research Foundation Email FormatsExamplePercentage
FLast@cystinosisresearch.orgJDoe@cystinosisresearch.org
100%

Frequently Asked Questions

What is Cystinosis Research Foundation's phone number?

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You can contact Cystinosis Research Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Cystinosis Research Foundation's official website and social media links?

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Cystinosis Research Foundation's official website is cystinosisresearch.org and has social profiles on LinkedInCrunchbase.

How much revenue does Cystinosis Research Foundation generate?

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As of August 2026, Cystinosis Research Foundation's annual revenue is estimated to be $1M - $10M.

What is Cystinosis Research Foundation's SIC code NAICS code?

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Cystinosis Research Foundation's SIC code is 8731 - Commercial Physical and Biological Research NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Cystinosis Research Foundation have currently?

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As of August 2026, Cystinosis Research Foundation has approximately 7 employees across 1 continents, including North America. Key team members include Board Of Trustees: J. N.. Explore Cystinosis Research Foundation's employee directory with LeadIQ.

What industry does Cystinosis Research Foundation belong to?

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Cystinosis Research Foundation operates in the Research Services industry.

What technology does Cystinosis Research Foundation use?

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Cystinosis Research Foundation's tech stack includes Microsoft 365SwiperCloudflare Bot ManagementBootstrapX-Content-Type-OptionsGravity FormsAstraNginx.

What is Cystinosis Research Foundation's email format?

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Cystinosis Research Foundation's email format typically follows the pattern of FLast@cystinosisresearch.org. Find more Cystinosis Research Foundation email formats with LeadIQ.

How much funding has Cystinosis Research Foundation raised to date?

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As of August 2026, Cystinosis Research Foundation has raised $2M in funding. The last funding round occurred on Feb 02, 2015 for $490K.
Cystinosis Research Foundation logo

Cystinosis Research Foundation

Research ServicesCalifornia, United States2-10 Employees

The Cystinosis Research Foundation is a small organization in Irvine, California, dedicated to advancing cystinosis research across both laboratory and clinical settings to expand treatment options and pursue a cure. It runs a bi-annual program to identify and support research projects, with the aim of accelerating progress and focusing on novel therapies. The foundation also seeks to educate the public and the medical community about cystinosis to promote early diagnosis and appropriate treatment.

Operating with a small team, the foundation concentrates its activities in the field of cystinosis research. In September 2019, Global Genes recognized the organization as a Rare Champion of Hope for research and treatment.

Section iconCompany Overview

Phone number
SIC Code
8731 - Commercial Physical and Biological Research
NAICS Code
5417 - Scientific Research and Development Services
Employees
2-10

Section iconFunding & Financials

  • $2M

    Cystinosis Research Foundation has raised a total of $2M of funding over 2 rounds. Their latest funding round was raised on Feb 02, 2015 in the amount of $490Kas a grant.

  • $1M - $10M

    Cystinosis Research Foundation's revenue is estimated to be in the range of $1M - $10M

Section iconFunding & Financials

  • $2M

    Cystinosis Research Foundation has raised a total of $2M of funding over 2 rounds. Their latest funding round was raised on Feb 02, 2015 in the amount of $490Kas a grant.

  • $1M - $10M

    Cystinosis Research Foundation's revenue is estimated to be in the range of $1M - $10M

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