Angelman Syndrome Foundation

Individual and Family ServicesIllinois, United States11-50 Employees

The Angelman Syndrome Foundation is a nonprofit organization based in Aurora, Illinois, focused on Angelman syndrome—an uncommon neuro-genetic disorder marked by developmental delay, absent speech, seizures and balance or walking problems that necessitate lifelong care. It operates within the field of individual and family services, raising funds for research and providing support to affected families. Given its genetic link to autism and related conditions, researchers believe advances in Angelman syndrome could inform treatments for other disorders. The foundation maintains a resource platform with up-to-date information on research, education, general information and therapies for Angelman syndrome.

A notable recent development is the May 11, 2026 launch of the ASF ECHO Program, designed to connect clinicians with leading Angelman syndrome experts to expand access to high-quality care. It supports families and researchers by disseminating current information and facilitating education and therapies through its website and programs, aligning with its role in the rare-disease nonprofit sector.

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