EveryLife Foundation for Rare Diseases Employee Directory

Public Policy OfficesUnited States51-200 Employees

The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading science-driven policy and regulatory research, activating the community to advocate for their rights and needs, and strengthening the rare disease community.

Find EveryLife Foundation for Rare Diseases employees' phone numbers or email addresses

EveryLife Foundation for Rare Diseases Global Highlights

North America
79

United States Of America
78
Canada
1

Europe
3

Austria
1
Switzerland
1
United Kingdom Of Great Britain And Northern Ireland
1

EveryLife Foundation for Rare Diseases's Leadership

M. P.
Chief Executive Officer
Mobile Phone
Email
W. N.
Chief Marketing & Communications Officer
Mobile Phone
Email
C. K.
Chief Development Officer
Mobile Phone
Email
A. K.
Chief Of Policy, Advocacy, And Patient Engagement
Mobile Phone
Email
J. S.
Vice President Of Policy
Mobile Phone
Email
J. U.
Vice President Of Individual Giving
Mobile Phone
Email
T. B.
Vice President Of Alliance Development
Mobile Phone
Email
S. V. F.
Vice President Of Advocacy
Mobile Phone
Email

Contact profiles from EveryLife Foundation for Rare Diseases

Name

Title

Contact Info

Location

Last Update

M. K. M.
Senior Director Of Marketing And Communications
Mobile Phone
Email
United StatesNorth Carolina
Oct 28, 2025
S. S.
Associate Director Of Development
Mobile Phone
Email
Feb 05, 2025
C. S.
Alliance Development Manager
Mobile Phone
Email
United StatesNew York
May 21, 2025
K. J.
State Advocacy Manager
Mobile Phone
Email
Sep 14, 2023
M. F.
Board Member
Mobile Phone
Email
United StatesDistrict of Columbia
Sep 10, 2025
V. S.
Board Chair
Mobile Phone
Email
United StatesMaryland
Sep 11, 2025
N. M.
Young Adult Rare Representative (yarr)
Mobile Phone
Email
Oct 20, 2025
A. S.
Young Adult Rare Representative (yarr)
Mobile Phone
Email
United StatesNorth Carolina
Oct 23, 2025
J. C.
Young Adult Rare Representatives Advisory Committee
Mobile Phone
Email
United States
Aug 08, 2025
L. M.
Legislative Advocate (volunteer)
Mobile Phone
Email
United States
Sep 11, 2025

Frequently Asked Questions

What is EveryLife Foundation for Rare Diseases known for?

EveryLife Foundation for Rare Diseases was founded in 2009 operates in the Public Policy Offices industry. The company's main headquarters is located in 1012 14th Street NW, Suite 500, Washington, District of Columbia 20005, US; you can contact the main corporate office by phone at

+1-415-884-****

. Explore EveryLife Foundation for Rare Diseases's company overview page for more information.

What is EveryLife Foundation for Rare Diseases's most common email format?

EveryLife Foundation for Rare Diseases employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more EveryLife Foundation for Rare Diseases email formats with LeadIQ.

How many employees does EveryLife Foundation for Rare Diseases have currently?

EveryLife Foundation for Rare Diseases has approximately 70 employees as of October 2025. These team members are located across 2 continents, including North AmericaEurope.

Who are EveryLife Foundation for Rare Diseases's key employees and leadership?

As of October 2025, EveryLife Foundation for Rare Diseases's key employees include:

Chief Executive Officer: M. P.
Chief Marketing & Communications Officer: W. N.
Chief Development Officer: C. K.
Chief Of Policy, Advocacy, And Patient Engagement: A. K.
Vice President Of Policy: J. S.

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