Hermansky-Pudlak Syndrome Network Employee Directory
Hospitals and Health CareNew York, United States2-10 Employees
This organization was founded around a genetic disorder in albinos named Hermasky-Pudlak Syndrome. Our goal is to find a cure! Through relationships with interested doctors and the National Institutes of Health, we have begun new research protocols and drug trials are underway for Pulmonary Fibrosis and other related ailments.