Neurofibromatosis Midwest Employee Directory

Non-profit OrganizationsIllinois, United States2-10 Employees

Neurofibromatosis Midwest is a non-profit organization focused on addressing the needs of people affected by Neurofibromatosis through care, comfort, education, information, and resources that support treatment, prevention, and pursuit of a cure. Based in St. Charles, Illinois, the group serves Illinois, Indiana, Iowa, Kentucky, and Missouri and has evolved since its establishment in 1982 as a coalition of families impacted by NF who work to educate individuals, healthcare providers, and the broader medical research community. The organization emphasizes both ongoing research and high-quality patient care, reflecting its dual commitment to advancing understanding of NF and improving living experiences for affected individuals and families. A recent development highlights a collaboration with SpringWorks Therapeutics to sponsor programs for those affected by NF, indicating active partnerships to expand its reach and services.

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