Insights

Community Engagement The Rare Disease Foundation actively empowers parents through local and online Peer-to-Peer Resource Networks, indicating a strong community-driven approach that could be leveraged to promote support platforms, educational resources, or telehealth solutions tailored to families affected by rare diseases.

Funding & Research Focus With a mission to fund patient-focused research projects and improve care, there is an opportunity to offer innovative research funding platforms, data analytics tools, or collaboration software to enhance their grant management and research initiatives.

Partnership Opportunities Recent collaborations with organizations like The Cultch and Erganeo suggest openness to partnering for awareness campaigns, virtual event hosting, or educational content delivery, which could be valuable avenues for expanding outreach or engagement tools.

Digital Presence Utilization of multiple digital tools such as Shopify, Mailchimp, and social media indicates an ongoing investment in online community building and communication, providing avenues to introduce marketing automation, CRM solutions, or digital fundraising platforms to support their growth.

Funding & Growth Potential Operating with modest revenue levels but aligning with larger organizations in the sector, there is potential to position services that enhance their fundraising, grant management efficiencies, or strategic growth initiatives to scale their impact and reach more families and research projects.

Rare Disease Foundation Tech Stack

Rare Disease Foundation uses 8 technology products and services including Shopify, Mailchimp, TweenMax, and more. Explore Rare Disease Foundation's tech stack below.

Shopify

E-commerce

Mailchimp

TweenMax

Javascript Frameworks

PageFly

Page Builders

PayPal

Payment Processing

Priority Hints

Performance

MediaElement.js

Video Players

Twitter

Widgets

Rare Disease Foundation Email Formats	Example	Percentage
FLast@rarediseasefoundation.org	JDoe@rarediseasefoundation.org	50%
FLast@rarediseasefoundation.org	JDoe@rarediseasefoundation.org	50%

Rare Disease Foundation Email Formats

Example

Percentage

FLast@rarediseasefoundation.org

JDoe@rarediseasefoundation.org

50%

FLast@rarediseasefoundation.org

JDoe@rarediseasefoundation.org

50%

Frequently Asked Questions

Where is Rare Disease Foundation's headquarters located?

Rare Disease Foundation's main headquarters is located at 4500 C234 Vancouver, British Columbia v6h 3n1 Canada. The company has employees across 2 continents, including North AmericaAsia.

What is Rare Disease Foundation's phone number?

You can contact Rare Disease Foundation's main corporate office by phone at

+1-604-318-****

. For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Rare Disease Foundation's official website and social media links?

Rare Disease Foundation's official website is rarediseasefoundation.org and has social profiles on LinkedIn.

What is Rare Disease Foundation's SIC code NAICS code?

Rare Disease Foundation's SIC code is 4899 - Communications Services, Not Elsewhere Classified NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Rare Disease Foundation have currently?

As of March 2026, Rare Disease Foundation has approximately 10 employees across 2 continents, including North AmericaAsia. Key team members include Executive Director: D. C.Parent Lead: L. B.It Manager: M. S.. Explore Rare Disease Foundation's employee directory with LeadIQ.

What industry does Rare Disease Foundation belong to?

Rare Disease Foundation operates in the Research Services industry.

What technology does Rare Disease Foundation use?

Rare Disease Foundation's tech stack includes ShopifyMailchimpTweenMaxPageFlyPayPalPriority HintsMediaElement.jsTwitter.

What is Rare Disease Foundation's email format?

Rare Disease Foundation's email format typically follows the pattern of FLast@rarediseasefoundation.org. Find more Rare Disease Foundation email formats with LeadIQ.

When was Rare Disease Foundation founded?

Rare Disease Foundation was founded in 2009.

Rare Disease Foundation

Q: How many employees does Rare Disease Foundation have currently?

Rare Disease Foundation has approximately 10 employees.

Q: What technology does Rare Disease Foundation use?

Rare Disease Foundation's tech stack includes PageFly, Google Analytics, HSTS, Cloudflare, ScrollReveal.

Research ServicesBritish Columbia, Canada2-10 Employees

One in 12 people will be affected by a rare disease in their lifetime and children bear the brunt of this burden.  The Rare Disease Foundation bridges the gap between research and care for children with rare diseases, funding inspired patient-focused research projects poised to directly impact their care and quality of life. Our vision is to transform the world of rare disease care. The Rare Disease Foundation empowers parents to solve problems that are commonly seen in the rare diseases by linking parents together locally and on the web with our Parent 2 Parent Resource Networks. We are always looking to expand so please contact us if you wish to start a group in your area.

Insights

Similar companies to Rare Disease Foundation

CURE Epilepsy

Global Genes

Epilepsy Foundation

Genetic Alliance

EveryLife Foundation for Rare Diseases