Insights

Strong Community Engagement The Rare Disease Foundation actively links parents through local and online Parent 2 Parent Resource Networks, creating an engaged community that values support and shared knowledge. This presents an opportunity to develop specialized communication or support platform services tailored to their network expansion goals.

Focused Funding Initiatives By funding patient-centered research projects aimed at directly improving care and quality of life, the foundation may benefit from partnerships with organizations offering research management tools, data analytics solutions, and grant management software to enhance funding efficiency.

Potential for Tech Enhancement With existing tools like Shopify, Mailchimp, and Twitter, the foundation is open to increasing its digital outreach and operational efficiencies, suggesting potential sales opportunities in CRM integration, marketing automation, and online engagement solutions.

Collaborative Outreach Recent collaborations, such as partnering with The Cultch to stream theater productions, indicate a willingness to explore innovative awareness campaigns. This opens avenues for event management, virtual event platforms, and multi-channel promotion services to further raise awareness in the rare disease community.

Funding and Growth Potential Although currently with modest revenue levels, the foundation's mission-driven focus and community networks position it for growth and increased funding, creating opportunities for financial services, impact investing, or technology that supports scalable fundraising efforts.

Rare Disease Foundation Tech Stack

Rare Disease Foundation uses 8 technology products and services including Shopify, Mailchimp, TweenMax, and more. Explore Rare Disease Foundation's tech stack below.

  • Shopify
    E-commerce
  • Mailchimp
    Email
  • TweenMax
    Javascript Frameworks
  • PageFly
    Page Builders
  • PayPal
    Payment Processing
  • Priority Hints
    Performance
  • MediaElement.js
    Video Players
  • Twitter
    Widgets

Rare Disease Foundation's Email Address Formats

Rare Disease Foundation uses at least 1 format(s):
Rare Disease Foundation Email FormatsExamplePercentage
FLast@rarediseasefoundation.orgJDoe@rarediseasefoundation.org
50%
FLast@rarediseasefoundation.orgJDoe@rarediseasefoundation.org
50%

Frequently Asked Questions

Where is Rare Disease Foundation's headquarters located?

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Rare Disease Foundation's main headquarters is located at C234, 4500 OAK ST., Vancouver, British Columbia V6H 3N1, CA. The company has employees across 2 continents, including North AmericaAsia.

What is Rare Disease Foundation's phone number?

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You can contact Rare Disease Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Rare Disease Foundation's official website and social media links?

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Rare Disease Foundation's official website is rarediseasefoundation.org and has social profiles on LinkedIn.

What is Rare Disease Foundation's NAICS code?

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Rare Disease Foundation's NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Rare Disease Foundation have currently?

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As of October 2025, Rare Disease Foundation has approximately 11 employees across 2 continents, including North AmericaAsia. Key team members include Executive Director: D. C.Parent Lead: L. B.It Manager: M. S.. Explore Rare Disease Foundation's employee directory with LeadIQ.

What industry does Rare Disease Foundation belong to?

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Rare Disease Foundation operates in the Research Services industry.

What technology does Rare Disease Foundation use?

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Rare Disease Foundation's tech stack includes ShopifyMailchimpTweenMaxPageFlyPayPalPriority HintsMediaElement.jsTwitter.

What is Rare Disease Foundation's email format?

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Rare Disease Foundation's email format typically follows the pattern of FLast@rarediseasefoundation.org. Find more Rare Disease Foundation email formats with LeadIQ.

When was Rare Disease Foundation founded?

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Rare Disease Foundation was founded in 2009.

Rare Disease Foundation

Research ServicesCanada11-50 Employees

One in 12 people will be affected by a rare disease in their lifetime and children bear the brunt of this burden.  The Rare Disease Foundation bridges the gap between research and care for children with rare diseases, funding inspired patient-focused research projects poised to directly impact their care and quality of life. Our vision is to transform the world of rare disease care. The Rare Disease Foundation empowers parents to solve problems that are commonly seen in the rare diseases by linking parents together locally and on the web with our Parent 2 Parent Resource Networks. We are always looking to expand so please contact us if you wish to start a group in your area.

Section iconCompany Overview

Headquarters
C234, 4500 OAK ST., Vancouver, British Columbia V6H 3N1, CA
Phone number
NAICS Code
5417 - Scientific Research and Development Services
Founded
2009
Employees
11-50

Section iconFunding & Financials

  • $1M

    Rare Disease Foundation's revenue is estimated to be in the range of $1M

Section iconFunding & Financials

  • $1M

    Rare Disease Foundation's revenue is estimated to be in the range of $1M

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