Insights

Strategic Partnerships There is a pattern of collaboration with cultural institutions and organizations (e.g., The Cultch, Erganeo) indicating openness to joint programs and co-branded initiatives. This suggests sales opportunities around sponsored events, patient-focused programs, and cross-promotion partnerships to raise awareness and funding.

Funding Focus Revenue is under $1M with a mission-driven model centered on funding inspired patient-focused research. This points to potential opportunities in grant facilitation services, fundraising platform support, donor stewardship programs, or grant writing partnerships to scale funding for rare disease projects.

Network Leveraging Active Parent to Parent Resource Networks imply a ready-made community channel for outreach, education, and program recruitment. Sales can target community engagement tools, supporter management software, and localized event solutions to expand their network and impact.

Leadership and Growth Recent leadership addition as Co-founder and Medical Geneticist and a small team suggest potential needs for scalable operations support, research collaboration platforms, and clinical-grade communications tools as they grow their research portfolio and partnerships.

Technology Footprint Existing tech stack includes Shopify, oEmbed, Vimeo, PayPal, and social channels. There is room for expanding e-commerce capabilities, content monetization for donor programs, and analytics-driven outreach or CRM integrations to optimize fundraising and project dissemination.

Similar companies to Rare Disease Foundation

Rare Disease Foundation Tech Stack

Rare Disease Foundation uses 8 technology products and services including Amazon Web Services, WordPress, Shopify, and more. Explore Rare Disease Foundation's tech stack below.

Rare Disease Foundation's Email Address Formats

Rare Disease Foundation uses at least 1 email format:
Rare Disease Foundation Email FormatsExamplePercentage
FLast@rarediseasefoundation.orgJDoe@rarediseasefoundation.org
100%

Frequently Asked Questions

What is Rare Disease Foundation's phone number?

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You can contact Rare Disease Foundation's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Rare Disease Foundation's official website and social media links?

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Rare Disease Foundation's official website is rarediseasefoundation.org and has social profiles on LinkedIn.

How much revenue does Rare Disease Foundation generate?

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As of August 2026, Rare Disease Foundation's annual revenue is estimated to be <$1M.

What is Rare Disease Foundation's SIC code and NAICS code?

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Rare Disease Foundation's SIC code is 4899 - Communications Services, Not Elsewhere Classified and NAICS code is 5417 - Scientific Research and Development Services.

How many employees does Rare Disease Foundation have currently?

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As of August 2026, Rare Disease Foundation has approximately 10 employees across 1 continents, including North America. Key team members include Executive Director: D. C., Peer 2 Peer Program Participant: E. S. and Accountant: B. L. Explore Rare Disease Foundation's employee directory with LeadIQ.

What industry does Rare Disease Foundation belong to?

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Rare Disease Foundation operates in the Research Services industry.

What technology does Rare Disease Foundation use?

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Rare Disease Foundation's tech stack includes Amazon Web Services, WordPress, Shopify, Mailchimp, Apple Pay, PayPal, Vimeo and Piwik PRO Core.

What is Rare Disease Foundation's email format?

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Rare Disease Foundation's email format typically follows the pattern of FLast@rarediseasefoundation.org. Find more Rare Disease Foundation email formats with LeadIQ.

When was Rare Disease Foundation founded?

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Rare Disease Foundation was founded in 2009.
Rare Disease Foundation logo

Rare Disease Foundation

Research ServicesBritish Columbia, Canada2-10 Employees

Based in Vancouver, British Columbia, the Rare Disease Foundation operates in the research services arena with a focus on pediatric rare diseases. It funds patient-focused research projects that are intended to directly improve treatment options and quality of life for affected children, helping to close the gap between research and care. The organization also builds and supports Parent 2 Parent Resource Networks, enabling families to connect and address common challenges, and it seeks to expand these networks to additional regions. 

It serves families of children with rare diseases and the researchers and clinicians involved in their care, aiming to align research activities with real-world needs. Recent collaborations, including partnerships with The Cultch and Erganeo, illustrate its practice of forming external alliances to advance its mission.

Section iconCompany Overview

Phone number
SIC Code
4899 - Communications Services, Not Elsewhere Classified
NAICS Code
5417 - Scientific Research and Development Services
Founded
2009
Employees
2-10

Section iconFunding & Financials

  • <$1M

    Rare Disease Foundation's revenue is estimated to be in the range of <$1M

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