Insights

Niche Market Focus Rare Genomics Institute specializes in serving patients with undiagnosed and rare diseases, representing a dedicated niche market that values personalized genetic and research services. This presents opportunities for technological solutions, advanced research tools, and specialized data management systems tailored to the unique needs of the rare disease community.

Strong Community Engagement RG fosters an active online community of rare disease patients and advocates, providing a potential platform for targeted outreach, patient support solutions, and educational content distribution, enhancing brand loyalty and patient engagement efforts.

Collaborative Partnerships Recent collaborations with diagnostic laboratories and research organizations indicate RG’s openness to strategic alliances, which could be expanded to include technology providers, clinical trial networks, and data analytics firms interested in the rare disease segment.

Growing Financial Scale With revenues estimated between $10M and $50M, RG has a substantial financial foundation, signaling a viable target for services involving scalable healthcare technology, research funding, or expansion of genetic sequencing capabilities.

Innovation and Programs Initiatives like the RareWear program and involvement in international rare disease days demonstrate RG’s innovative approach to awareness and patient services, opening opportunities for wearable technology, health monitoring, and digital engagement solutions to support their programs.

Similar companies to Rare Genomics Institute

Rare Genomics Institute Tech Stack

Rare Genomics Institute uses 8 technology products and services including Google Ads, GDPR, Stimulus, and more. Explore Rare Genomics Institute's tech stack below.

  • Google Ads
    Advertising
  • GDPR
    Certificates
  • Stimulus
    Javascript Frameworks
  • Google AI
    Machine Learning
  • Google
    Search Engines
  • YouTube
    Video Players
  • Google Analytics
    Web Analytics
  • GoDaddy
    Web Hosting

Rare Genomics Institute's Email Address Formats

Rare Genomics Institute uses at least 1 format(s):
Rare Genomics Institute Email FormatsExamplePercentage
First.Last@raregenomics.orgJohn.Doe@raregenomics.org
50%
First.Last@raregenomics.orgJohn.Doe@raregenomics.org
50%

Frequently Asked Questions

Where is Rare Genomics Institute's headquarters located?

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Rare Genomics Institute's main headquarters is located at 8504 Firestone Blvd., #198 Downey , CA 90241, US. The company has employees across 2 continents, including North AmericaAsia.

What is Rare Genomics Institute's phone number?

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You can contact Rare Genomics Institute's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Rare Genomics Institute's official website and social media links?

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Rare Genomics Institute's official website is raregenomics.org and has social profiles on LinkedIn.

What is Rare Genomics Institute's SIC code NAICS code?

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Rare Genomics Institute's SIC code is 8733 - Noncommercial Research Organizations NAICS code is 541714 - Research and Development in Biotechnology (except Nanobiotechnology).

How many employees does Rare Genomics Institute have currently?

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As of October 2025, Rare Genomics Institute has approximately 51 employees across 2 continents, including North AmericaAsia. Key team members include Vice President Of Research & Development: A. G.President: J. L.Co-Founder, Chief Scientific Officer, & Board Member: I. B.. Explore Rare Genomics Institute's employee directory with LeadIQ.

What industry does Rare Genomics Institute belong to?

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Rare Genomics Institute operates in the Biotechnology Research industry.

What technology does Rare Genomics Institute use?

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Rare Genomics Institute's tech stack includes Google AdsGDPRStimulusGoogle AIGoogleYouTubeGoogle AnalyticsGoDaddy.

What is Rare Genomics Institute's email format?

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Rare Genomics Institute's email format typically follows the pattern of First.Last@raregenomics.org. Find more Rare Genomics Institute email formats with LeadIQ.

When was Rare Genomics Institute founded?

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Rare Genomics Institute was founded in 2011.

Rare Genomics Institute

Biotechnology ResearchUnited States51-200 Employees

Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases. RG helps rare disease patients find a diagnosis, treatment, and pathway to a cure by individualized access, coordination and execution of genetic sequencing and research services with RG and its affiliates. RG also supports rare disease advocacy by fostering an online community of rare disease patients, and supporting rare disease research through a yearly grant competition. We hope that these efforts slowly push science and care forward to meet the needs of the patients affected by rare diseases.

Section iconCompany Overview

Headquarters
8504 Firestone Blvd., #198 Downey , CA 90241, US
Phone number
SIC Code
8733 - Noncommercial Research Organizations
NAICS Code
541714 - Research and Development in Biotechnology (except Nanobiotechnology)
Founded
2011
Employees
51-200

Section iconFunding & Financials

  • $10M$25M

    Rare Genomics Institute's revenue is estimated to be in the range of $10M$25M

Section iconFunding & Financials

  • $10M$25M

    Rare Genomics Institute's revenue is estimated to be in the range of $10M$25M

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