Insights

Strategic Partnerships Rare Genomics Institute has a history of collaborations with diagnostic labs and sequencing providers (DanteLabs, PacBio/HiFi via iHope network) which indicates openness to partner-driven growth. Sales opportunities exist in offering integrated sequencing services, data analysis pipelines, and joint grant-based programs that expand diagnostic capabilities for undiagnosed rare diseases.

Funding and Scale With reported revenue in the mid seven figures and a nonprofit structure, RG operates at a scalable but mission-driven level. This suggests opportunities for grant-aligned sponsorships, philanthropy-led campaigns, and service tier offerings for funded patients or affiliated advocacy groups.

Tech Stack Synergy RG already leverages cloud platforms, AI/ML tooling (PyTorch), and sequencing workflows, presenting a strong base for offering cloud-based data analysis, secure data sharing, and compliant genomic interpretation solutions tailored to rare disease research.

Global Network References to international expansion through iHope and collaborations indicate an appetite for cross-border diagnostics programs. Sales pitches can emphasize multinational service delivery, remote sequencing coordination, and support for clinics or advocacy groups across regions.

Advocacy and Reach Active patient advocacy community and annual grant competitions highlight RG’s access to patient cohorts and researchers. This creates opportunities to offer study recruitment services, patient deduplication and consent management tools, and co-branded education resources to accelerate rare disease research.

Rare Genomics Institute Tech Stack

Rare Genomics Institute uses 8 technology products and services including Google Ads, Amazon Web Services, jQuery UI, and more. Explore Rare Genomics Institute's tech stack below.

  • Google Ads
    Advertising
  • Amazon Web Services
    Cloud Hosting
  • jQuery UI
    Javascript Libraries
  • PyTorch
    Machine Learning
  • Microsoft Azure
    Platform As A Service
  • reCAPTCHA
    Security
  • Google Search Console
    Web Analytics
  • GoDaddy
    Web Hosting

Rare Genomics Institute's Email Address Formats

Rare Genomics Institute uses at least 1 format(s):
Rare Genomics Institute Email FormatsExamplePercentage
First.Last@raregenomics.orgJohn.Doe@raregenomics.org
100%

Frequently Asked Questions

What is Rare Genomics Institute's phone number?

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You can contact Rare Genomics Institute's main corporate office by phone at . For more prospecting data, LeadIQ has access to up-to-date and accurate contact information within our platform. Find, capture, and sync contact data to your CRM and sales tools in one click.

What is Rare Genomics Institute's official website and social media links?

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Rare Genomics Institute's official website is raregenomics.org and has social profiles on LinkedIn.

How much revenue does Rare Genomics Institute generate?

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As of July 2026, Rare Genomics Institute's annual revenue is estimated to be $10M - $25M.

What is Rare Genomics Institute's SIC code NAICS code?

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Rare Genomics Institute's SIC code is 8731 - Commercial Physical and Biological Research NAICS code is 541714 - Research and Development in Biotechnology (except Nanobiotechnology).

How many employees does Rare Genomics Institute have currently?

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As of July 2026, Rare Genomics Institute has approximately 38 employees across 2 continents, including North AmericaAsia. Key team members include Vice President Of Research & Development: A. G.President: J. L.Founder And Director, Rare Genomics Institute Israel: N. S.. Explore Rare Genomics Institute's employee directory with LeadIQ.

What industry does Rare Genomics Institute belong to?

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Rare Genomics Institute operates in the Biotechnology Research industry.

What technology does Rare Genomics Institute use?

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Rare Genomics Institute's tech stack includes Google AdsAmazon Web ServicesjQuery UIPyTorchMicrosoft AzurereCAPTCHAGoogle Search ConsoleGoDaddy.

What is Rare Genomics Institute's email format?

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Rare Genomics Institute's email format typically follows the pattern of First.Last@raregenomics.org. Find more Rare Genomics Institute email formats with LeadIQ.

When was Rare Genomics Institute founded?

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Rare Genomics Institute was founded in 2011.
Rare Genomics Institute logo

Rare Genomics Institute

Biotechnology ResearchCalifornia, United States11-50 Employees

Rare Genomics Institute (RG) is a biotechnology research organization founded in 2011 to address the healthcare gap faced by patients with undiagnosed rare diseases. It coordinates access to genetic sequencing and related research services through its network of affiliates, supporting diagnostic evaluation, treatment options, and pathways toward cure.

Based in Downey, California, RG operates as a nonprofit patient advocacy group that also fosters an online community for rare disease patients and funds research through a yearly grant competition. Its activities connect the rare disease community with researchers and clinicians to advance understanding and care. In 2026, a collaboration resulted in PacBio's HiFi long-read sequencing being integrated into iHope's international network to improve rare disease diagnostics.

Section iconCompany Overview

Phone number
SIC Code
8731 - Commercial Physical and Biological Research
NAICS Code
541714 - Research and Development in Biotechnology (except Nanobiotechnology)
Founded
2011
Employees
11-50

Section iconFunding & Financials

  • $10M - $25M

    Rare Genomics Institute's revenue is estimated to be in the range of $10M - $25M

Section iconFunding & Financials

  • $10M - $25M

    Rare Genomics Institute's revenue is estimated to be in the range of $10M - $25M

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