The Ehlers-Danlos Society Employee Directory

Non-profit OrganizationsNew York, United States51-200 Employees

The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Our Vision
To create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.

Find The Ehlers-Danlos Society employees' phone numbers or email addresses

The Ehlers-Danlos Society Global Highlights

Location
Employees

North America
28

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  • United States Of America
    26
  • Canada
    2

Europe
23

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  • United Kingdom Of Great Britain And Northern Ireland
    21
  • Belgium
    1
  • Netherlands
    1

Oceania
8

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  • Australia
    8

The Ehlers-Danlos Society's Leadership

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    S. W.
    Chief Operations Officer
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    R. R.
    Chief Financial Officer
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    A. H. M.
    Non Executive Director
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    R. B.
    Creative And Digital Communications Director
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    D. H.
    Director Of Development
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    B. L.
    Deputy Director
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    E. A.
    Director Of Finance
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    E. S.
    Marketing Director
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The Ehlers-Danlos Society Employee Metrics

100%
50%
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2026
2025
  • Education
  • Arts & Design
  • Business
  • Information Technology
  • Program & Project Management
  • Other
  • Administrative

Contact profiles from The Ehlers-Danlos Society

Name
Title
Contact Info
Location
Last Update
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    J. H.
    Design And Communications Manager
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    UNITED KINGDOMLondon
    Oct 31, 2023
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    J. A.
    Senior Graphic Designer
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    United KingdomEngland
    Nov 05, 2025
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    M. S. P.
    The Ehlers-Danlos Consortium Member
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    NetherlandsThe Randstad
    Nov 05, 2025
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    S. H.
    Accessibility Coordinator
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    United Kingdom
    Nov 15, 2025
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    N. R.
    Disabled
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    United StatesMassachusetts
    Oct 19, 2025
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    L. R.
    Educational Program Coordinator
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    United StatesNew York
    Nov 19, 2025
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    M. M.
    Consultant
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    United StatesTexas
    Jan 29, 2026
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    J. D.
    Grants And Foundations Coordinator
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    Apr 09, 2025
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    J. S.
    Advocate For Awareness (volunteer)
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    United StatesSouth Carolina
    Jan 08, 2025
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    O. M.
    Us Eds Echo Programs Coordinator
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    United StatesConnecticut
    Oct 17, 2024

Frequently Asked Questions

What is The Ehlers-Danlos Society known for?

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The Ehlers-Danlos Society was founded in 1985 operates in the Non-profit Organizations industry. The company's main headquarters is located in 447 Broadway #670 2nd Floor New York, New York 10013 United States. Explore The Ehlers-Danlos Society's company overview page for more information.

What is The Ehlers-Danlos Society's most common email format?

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The Ehlers-Danlos Society employees' email format typically follows the pattern of . Trying to find reliable and up-to-date employee contact data? Find more The Ehlers-Danlos Society email formats with LeadIQ.

How many employees does The Ehlers-Danlos Society have currently?

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The Ehlers-Danlos Society has approximately 56 employees as of February 2026. These team members are located across 3 continents, including North AmericaEuropeOceania.

Who are The Ehlers-Danlos Society's key employees and leadership?

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As of February 2026, The Ehlers-Danlos Society's key employees include:

  • Chief Operations Officer: S. W.
  • Chief Financial Officer: R. R.
  • Non Executive Director: A. H. M.
  • Creative And Digital Communications Director: R. B.
  • Director Of Development: D. H.

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