The Marfan Foundation Employee Directory
Non-profit OrganizationsNew York, United States51-200 Employees
Based in Port Washington, New York, The Marfan Foundation is a mid-sized nonprofit focused on inherited vascular and aortic conditions, including Marfan syndrome and related disorders such as Loeys-Dietz, Stickler, and vascular Ehlers-Danlos syndromes. It functions as a community and resource hub, providing support to affected individuals and families while funding research, education, and programming intended to extend lives and improve quality of life. The organization also serves as a primary online reference for scientists, healthcare providers, and laypeople, connecting researchers with patients and families. In 2025, the foundation launched a dedicated website for Aortic Dissection Awareness Week to share patient resources. It also marked its 40th conference that year, highlighting ongoing programming and community engagement.
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